A Friend for the Long Haul: A Long Covid Podcast cover image

A Friend for the Long Haul: A Long Covid Podcast

Latest episodes

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Jul 3, 2025 • 48min

Part 2 of Microphones, Masks, and Music: Navigating Long COVID and Identity with Nina Storey

If you'd like to support this one-disabled-woman-produced podcast, check out my ⁠Bonfire site for silly long covid apparel⁠. Items bought in the shop support the renewal of my Zoom license for recording. Many items co-support other chronically ill friends. I also have an ⁠Amazon wishlist ⁠and ⁠Storefront⁠. I'll get a few pennies if you purchase your everyday items through the links in my storefront. You can also Venmo me @afriend4thelonghaul.Welcome to another episode of A Friend for the Long Haul: A Long Covid Podcast! This is part 2 of my conversation with Nina Storey. In this episode, we talk about:Nina's plans for the futureGetting dogs while dealing with long CovidCute aggressionFunctioning in public around people when you're used to being at homeHow it feels like long Covid has made pre-existing sensitivities more intenseWhere all the lip balms and hair ties goMedical gaslightingNina's attempts to soothe her nervous system and how singing helpsHer experience getting the Novavax boosterThe fact that we don't know how to feel angerMy travel tips for Las VegasNina's dog's autoimmune issuesNina has shared a link to her song, Shadows Fall, which can be listened to on Even. Even is a new streaming platform she's using for her music. The model is pay what you can, and the funds go to artists. She says this about the release: "I wrote this song (which is still in demo form) about living with a chronic illness and how sometimes we have to be our own biggest champions. I got Long Covid after initially being infected in early 2020, and I have to say the silver lining has been meeting some extraordinary warriors in the disability community. So this song is dedicated to them and to any person facing health challenges. I see you. ✊🏼💕🙏🏼🙌🏼🎉"You can find Nina and tour information on her ⁠website⁠, and on ⁠Instagram⁠. She is published in ⁠The Long Covid Reader⁠, and her comedy writing is at ⁠https://strangelyoptimistic.com/⁠.  If you're interested in Nina's Singing To Improve Health or Vocal Classes for Beginners to Professionals workshops, email theninastorey@gmail.com. Mention the podcast for 20% off the regular price! Please share A Friend for the Long Haul. If you're feeling generous, leave a review. Your support helps get this in front of more earballs and helps me bring more episodes. You can listen to the A Friend for the Long Haul Long Covid Theme Songs playlist on Spotify.Disclaimers etc: The information provided in this podcast is for informational and educational purposes only and is not medical advice. The views and opinions expressed by the host and guests are their own and do not necessarily reflect those of the podcast producers, sponsors, or affiliated organizations. Or like, friends? Family? Anyone. This podcast does not provide medical diagnosis, treatment, or professional healthcare services. If you have any concerns regarding your health or medical condition, please consult a qualified healthcare provider. Never disregard professional medical advice or delay seeking treatment based on information heard in this podcast. Please don't compare yourself to someone else you hear, either. Our illnesses are highly individualized and what works for one person may not work for you. While we strive to provide accurate and up-to-date information, medical knowledge is constantly evolving, and we make no guarantees regarding the completeness, reliability, or applicability of the content discussed. The podcast and its creator assumes no responsibility for any actions taken based on the information presented. Additionally, this podcast may feature discussions on sensitive topics related to chronic illness. Listener discretion is advised. By listening to this podcast, you acknowledge and agree to these terms.
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Jun 24, 2025 • 47min

Microphones, Masks, and Music: Navigating Long COVID and Identity with Nina Storey

If you'd like to support this one-woman-produced podcast, check out my ⁠Bonfire site for silly long covid apparel⁠. Items bought in the shop support the renewal of my Zoom license for recording. Many items co-support other chronically ill friends. I also have an ⁠Amazon wishlist ⁠and ⁠Storefront⁠. I'll get a few pennies if you purchase your everyday items through the links in my storefront. You can also Venmo me @afriend4thelonghaul. ---Welcome to Season 3, Episode 3 of A Friend for the Long Haul - A Long COVID Podcast! I got to sit down and talk with my dear friend, Grammy-nominated artist, and incredibly talented human, Nina Storey. Nina’s website highlights her amazing career:“Nina Storey has been making waves, having opened for other powerhouse female performers like Sara Bareilles, Rachel Platten, Milck, and Hailey Reinhart, as well as performing in numerous international festivals, such as the Montreal Jazz Festival and the New Orleans JazzFest. People Magazine wrote, “With a voice like hers, pyrotechnics are redundant.”. This conversation was just shy of two hours, so I split it up into 2 episodes. Part 2 will be released on 6/30. In part 1, we discuss Long COVID's impact on Nina’s creativity, songwriting process, and career, including lost work and venue discrimination, emotional processing, grief, and the nervous system.You can find Nina and tour information on her ⁠website⁠, and on ⁠Instagram⁠. She is published in ⁠The Long Covid Reader⁠, and her comedy writing is at ⁠https://strangelyoptimistic.com/⁠.  If you're interested in Nina's Singing To Improve Health or Vocal Classes for Beginners to Professionals workshops, email theninastorey@gmail.com. Mention the podcast for 20% off the regular price! She will soon be using a new platform, EVEN, that pays artists. Despite millions of streams of her music, Nina says that Spotify has never paid her a dime. The EVEN model is pay what you can. "It's like Bandcamp and Patreon had a baby." You can also send her a tip via Venmo: @Nina-Storey.Nina shared that the clinic in Sedona she has been working with for her Long Covid symptoms is remote and their website is: mybiohack.com. I have not used the clinic. All information is Nina's anecdotal experience. The clinic is not endorsed by the pod, nor is the pod sponsored by the clinic. Neither is Nina. Please share A Friend for the Long Haul. If you're feeling generous, leave a review. Your support helps get this in front of more earballs and helps me bring more episodes. You can listen to the A Friend for the Long Haul Long Covid Theme Songs playlist on Spotify.Disclaimers etc: The information provided in this podcast is for informational and educational purposes only and is not medical advice. The views and opinions expressed by the host and guests are their own and do not necessarily reflect those of the podcast producers, sponsors, or affiliated organizations. Or like, friends? Family? Anyone. This podcast does not provide medical diagnosis, treatment, or professional healthcare services. If you have any concerns regarding your health or medical condition, please consult a qualified healthcare provider. Never disregard professional medical advice or delay seeking treatment based on information heard in this podcast. Please don't compare yourself to someone else you hear, either. Our illnesses are highly individualized and what works for one person may not work for you. While we strive to provide accurate and up-to-date information, medical knowledge is constantly evolving, and we make no guarantees regarding the completeness, reliability, or applicability of the content discussed. The podcast and its creator assumes no responsibility for any actions taken based on the information presented. Additionally, this podcast may feature discussions on sensitive topics related to chronic illness. Listener discretion is advised. By listening to this podcast, you acknowledge and agree to these terms.
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Jun 9, 2025 • 1h 43min

Love in the Time of Long COVID - Chimére and Tory Sweeney

A Friend for the Long Haul - A Long Covid Podcast 100% produced by a disabled Covid long hauler. If you'd like to support my work, please check out the following ways you can do so:My ⁠Amazon wish list⁠, which currently focuses on low-spoon activities for my family this summer. We have four kiddos, with three kids who are also navigating disabilities. You can also visit my ⁠⁠new Amazon storefront⁠⁠, where I share only the items I use, love, or highly recommend. If you use my links to buy products you already purchase from Amazon, they'll throw me a few pennies.Check out my my ⁠Bonfire shop⁠, where I create and sell long Covid items (shirts, totes, hats, etc) that reflect my dark sense of humor coping mechanism.---In this episode of A Friend for the Long Haul – A Long COVID Podcast, we dive into love, relationships, and resilience in the face of chronic illness. I sit down with Chimére Sweeney, a Long COVID activist, writer, and retired educator, alongside her husband, Tory Sweeney, to discuss their relationship and journey together.Chimére founded The Black Long COVID Experience, an initiative dedicated to amplifying Black Long COVID stories, advocating for equitable healthcare, and supporting disability access in Black communities. She and Tory met in college and reconnected after Chimére became ill, and their story sheds light on the emotional, social, and practical realities of navigating love and disability.We explore:💜 How childhood relationship models shape adult connection💜 Reconnecting and finding love despite chronic illness challenges💜 Navigating intimacy, disability, and Long COVID’s impact on relationships💜 Advocacy, resilience, and pushing for equity in medical care🚨 Content note: We discuss sex and intimacy with chronic illness, interabled relationships, and mental health topics including suicidal ideation.This episode was recorded in October, and I want to send a huge thank you to Chimére and Tory for their patience, wisdom, and honesty.Don't forget to like, subscribe, follow, and share A Friend for the Long Haul if you can. And if you're feeling extra generous, leave a review. Your support helps get this in front of more earballs and helps me bring more episodes.You can listen to the A Friend for the Long Haul Long Covid Theme Songs playlist on Spotify: https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K?si=7948dbf2222c4392The information provided in this podcast is for informational and educational purposes only and should not be considered medical advice. The views and opinions expressed by the host and guests are their own and do not necessarily reflect those of the podcast producers, sponsors, or affiliated organizations. Or like, friends? Family? Anyone.This podcast does not provide medical diagnosis, treatment, or professional healthcare services. If you have any concerns regarding your health or medical condition, please consult a qualified healthcare provider. Never disregard professional medical advice or delay seeking treatment based on information heard in this podcast. Please don't compare yourself to someone else you hear, either. Our illnesses are highly individualized and what works for one person may not work for you.While we strive to provide accurate and up-to-date information, medical knowledge is constantly evolving, and we make no guarantees regarding the completeness, reliability, or applicability of the content discussed. The podcast and its creators assume no responsibility for any actions taken based on the information presented.Additionally, this podcast may feature discussions on sensitive topics related to chronic illness. Listener discretion is advised. By listening to this podcast, you acknowledge and agree to these terms.
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May 20, 2025 • 1h 22min

Too Flared to Funk - A Long Covid Conversation with Caryn Zaner, PsyD

A Friend for the Long Haul - A Long Covid Podcast 100% produced by a disabled Covid long hauler. If you'd like to support my work, please check out the following ways you can do so:My ⁠Amazon wish list⁠, which currently focuses on low-spoon activities for my family this summer. We have four kiddos, with three kids who are also navigating disabilities. You can also visit my ⁠⁠new Amazon storefront⁠⁠, where I share only the items I use, love, or highly recommend. If you use my links to buy products you already purchase from Amazon, they'll throw me a few pennies.Check out my ⁠Bonfire shop⁠, where I create and sell long Covid items (shirts, totes, hats, etc) that reflect my dark sense of humor coping mechanism.--Welcome to Season 3 of A Friend for the Long Haul! In this episode, I twith Caryn Zaner, PsyD, a Clinical Psychologist based in Oregon specializing in anxiety, identity development, values work, and interpersonal group therapy. Caryn (they/none) provides tele-therapy for adults 18+ and shares their personal experience navigating Long Covid.Topics covered include:✅ Caryn’s journey with Long Covid and the support group they founded✅ People-pleasing, grief, coping mechanisms, and emotions✅ Perfectionism, social media pressures, and self-trust✅ Listening to your body and intuition when it feels unfamiliar✅ Comorbidities, chronic illness, and shared experiences🔔 Content Warning: From 59:45 - 1:14:05, we discuss:GLP-1 medications for Long Covid, including Caryn’s experience with tirzepatideStrength training, weight lifting, body image, and off-label medication accessIf you prefer to skip this section, jump to 1:14:05, where we wrap up with our signature three questions.Other things mentioned in this episodeMy Too Flared to Funk fake band tee shirt for The Social Distanced's "Survive 2025" World Tour. You can find Caryn on InstagramFelt Not Fixed: https://www.instagram.com/felt.not.fixed/Therapy for the Apocalypse: https://www.instagram.com/therapy.for.the.apocalypse/Caryn's websitehttps://www.carynzanerpsyd.com/The post that led me to Caryn: Attachment Theory and Still CovidingBook: Lifting Heavy Things by Laura KhoudariDon't forget to like, subscribe, follow, and share A Friend for the Long Haul if you can. And if you're feeling extra generous, leave a review. Your support helps get this in front of more earballs and helps me bring more episodes. You can listen to the A Friend for the Long Haul Long Covid Theme Songs playlist on Spotify: https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K?si=7948dbf2222c4392The information provided in this podcast is for informational and educational purposes only and should not be considered medical advice. The views and opinions expressed by the host and guests are their own and do not necessarily reflect those of the podcast producers, sponsors, or affiliated organizations. Or like, friends? Family? Anyone.This podcast does not provide medical diagnosis, treatment, or professional healthcare services. If you have any concerns regarding your health or medical condition, please consult a qualified healthcare provider. Never disregard professional medical advice or delay seeking treatment based on information heard in this podcast. Please don't compare yourself to someone else you hear, either. Our illnesses are highly individualized and what works for one person may not work for you.While we strive to provide accurate and up-to-date information, medical knowledge is constantly evolving, and we make no guarantees regarding the completeness, reliability, or applicability of the content discussed. The podcast and its creators assume no responsibility for any actions taken based on the information presented.Additionally, this podcast may feature discussions on sensitive topics related to chronic illness. Listener discretion is advised. By listening to this podcast, you acknowledge and agree to these terms.
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Dec 24, 2024 • 1h 18min

A Friend for the Long Haul's 1st Annual Long Covid Sickstravaganza Holiday Episode

A Friend for the Long Haul - A Long Covid Podcast 100% produced by a disabled Covid long hauler. If you'd like to support my work, please check out the following ways you can do so:My ⁠Amazon wish list⁠, which currently focuses on low-spoon activities for my family this summer. We have four kiddos, with three kids who are also navigating disabilities. You can also visit my ⁠⁠new Amazon storefront⁠⁠, where I share only the items I use, love, or highly recommend. If you use my links to buy products you already purchase from Amazon, they'll throw me a few pennies.Check out my ⁠Bonfire shop⁠, where I create and sell long Covid items (shirts, totes, hats, etc) that reflect my dark sense of humor coping mechanism.---Welcome to the 1st Annual Long Covid Sickstravaganza Holiday Episode! This episode features contributions from a few different lovely folks:Segment 1 features my 7 year old. We discuss what he really wants for the holidays - which is apparently for me to stop being so hard on myself. Oof.For Segment 2, The Long Covid Choir kindly shared a recording of a holiday song with us, called Alles Schweiget! Included is an introduction from choir director Merel van der Knoop. You can watch a video the choir put together on YouTube. In Segment 3, I have a chat with Lior Ocean about what a crock new year's resolutions are, and we discuss self compassion and showing ourselves loving kindness in 2025Segment 4 features Joe Glasgow, who contributed a story called If These Pillows Could TalkNina Storey kicked my ass with shares a demo of a new song called Shadows Fall (Love Myself). Nina said: "Let your audience know you inspired me after we spoke after your iron infusion, and every person dealing with a chronic illness and chronic pain or disability inspires this song too.  We are all warriors."Lyrics: Shadows Fall (Love Myself) Written by Nina Storey Verse Iso long alone surrounded by the noise still on my ownscattered through an empty voidbut get up and I show upcause I've grown up in the darkand I'm bleeding but I'm breathingand I know I'm come so farChorusshadows fall from yesterdaywhat I've lost is far awaywhere to go when all the love is gonewhen everyone has walked away and I alone have got to stay I learn to love myself and carry onVerse IItake my life in minutes count them each a winwhen I reach the end of one, then I start to count againso I'll fake it, 'till I make itcause most don't seem to carebut I'm ready and I'm clawing my way back for every breath of airBridgeI survived a stormy ride across my soulyou can't break meiron veins have made me wholeChorusshadows fall from yesterdaywhat I've lost is far awaywhere to go when all the love is gonewhen everyone has walked away I alone have got to stay learn to love myself and carry on Thank you all for contributing, and thank you listeners for supporting this endeavor this year! I hope you have a lovely holiday season!Don't forget to like, subscribe, follow, and share A Friend for the Long Haul if you can. And if you're feeling extra generous, leave a review. Your support helps get this in front of more earballs and helps me bring more episodes. You can listen to the A Friend for the Long Haul Long Covid Theme Songs playlist on Spotify.
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Dec 17, 2024 • 1h 56min

Clearing the Airwaves: A Long COVID Conversation with @kd_kinetic

A Friend for the Long Haul - A Long Covid Podcast 100% produced by a disabled Covid long hauler. If you'd like to support my work, please check out the following ways you can do so:My ⁠Amazon wish list⁠, which currently focuses on low-spoon activities for my family this summer. We have four kiddos, with three kids who are also navigating disabilities. You can also visit my ⁠⁠new Amazon storefront⁠⁠, where I share only the items I use, love, or highly recommend. If you use my links to buy products you already purchase from Amazon, they'll throw me a few pennies.Check out my ⁠Bonfire shop⁠, where I create and sell long Covid items (shirts, totes, hats, etc) that reflect my dark sense of humor coping mechanism.---Welcome to season 2 episode 12 of A Friend for the Long Haul - A Long COVID Podcast! This week's guest is Katie Drackert, who most of you will know as @kd_kinetic. Katie is the founder of Clear the Air ATX, a volunteer-led, community resource library that lends out air purifiers and other COVID mitigation tools for free to artists, musicians, and independent event producers in Austin, Texas - where I lived for many years and sadly had to leave due to my COVID experience.In the pre-rona days, Katie primarily worked full time as a performance artist. When Omicron hit, things changed. In this episode, we discuss our personal experiences with chronic health issues, including long COVID, and the challenges we face managing our symptoms while advocating for ourselves and others. We share our experiences with medical treatments, their emotional impacts, and the importance of community support and self-care. The conversation also touches on our backgrounds - which are really similar despite our age difference (I am an old) as well as our many shared interests, and future plans for advocacy work and creative projects that we are both plotting.By the end of this episode, I became fully obsessed with Katie, and I think you will, too! You can find out more about Katie's advocacy work in so many places! Check out: Co-created a Zine with The Sick Times, Featured in  BioWorld Med Tech, Teen Vogue, CBS Austin - Mask Bans, CBS Austin - Homeless Camping Ban, Texas Observer, Spectrum Local News, YES! Magazine, 48 Hills, KUT Austin, and Austin American Statesman. Follow Katie on Instagram Follow Clear the Air ATX on InstagramClear the Air ATX's Linktree is full of so many resources and ways you can donate and support the org!Don't forget to like, subscribe, follow, and share A Friend for the Long Haul if you can. And if you're feeling extra generous, leave a review. Your support helps get this in front of more earballs and helps me bring more episodes.You can listen to the A Friend for the Long Haul Long Covid Theme Songs playlist on Spotify: https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K?si=7948dbf2222c4392If you'd like to support this low budget/high love podcast, you can check out my Bonfire shirt for silly long covid apparel: https://www.bonfire.com/store/a-friend-for-the-long-haul/ or my Amazon wishlist: https://www.amazon.com/hz/wishlist/ls/3MYBB5G0P7YUD?ref_=wl_share
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Nov 25, 2024 • 1h 12min

A Pack Mentality - Long Covid Community and Canines with Ray

A Friend for the Long Haul - A Long Covid Podcast 100% produced by a disabled Covid long hauler. If you'd like to support my work, please check out the following ways you can do so:My ⁠Amazon wish list⁠, which currently focuses on low-spoon activities for my family this summer. We have four kiddos, with three kids who are also navigating disabilities. You can also visit my ⁠⁠new Amazon storefront⁠⁠, where I share only the items I use, love, or highly recommend. If you use my links to buy products you already purchase from Amazon, they'll throw me a few pennies.Check out my ⁠Bonfire shop⁠, where I create and sell long Covid items (shirts, totes, hats, etc) that reflect my dark sense of humor coping mechanism.---Hello, and welcome to another episode of A Friend for the Long Haul - A Long Covid Podcast! This week’s guest is Ray, who most long haulers will know from TikTok and Instagram as @rayandstormi. Ray, one of the first long haulers I met in September 2020, has stayed in touch since. A registered nurse and dog trainer, she shared her experience with Trigeminal neuralgia (TN), a chronic, severe facial pain disorder affecting the trigeminal nerve, known as one of the most painful conditions. Ray discussed her brain surgery for TN, her long COVID story, and being bendy friends (hypermobile/EDS).Since this episode was recorded, Ray has been hit by a number of setbacks - the most difficult being when her landlord decided to sell the townhouse she’s been renting for almost a decade. Ray has been a pivotal member of the long covid community from the start, so I really want to bring awareness to the gofundme she created to help her while she faces housing insecurity after her brain surgery: https://www.gofundme.com/f/help-ray-overcome-health-and-housing-crisis?attribution_id=sl:a483392d-3284-4f33-aa3e-22897038ef47&utm_campaign=man_ss_icons&utm_medium=customer&utm_source=copy_linkIf you’d rather provide mutual aid to Ray directly, here is her Venmo information: https://venmo.com/u/RayandstormiI’m also selling a series of holiday tshirts on my Bonfire shop in honor of Ray, and proceeds will be shared with her:“Happy Paw-lidays! Cure long covid” features a brown poodle, like the service dog Ray is training, Goose. The pup is wearing a red scarf and earmuffs. All I Want for Christmas is a Cure for Long Covid design 1 features Santa’s sleigh and reindeerAll I want for Christmas is a Cure for Long Covid design 2 features a cute sloth wearing a red hat and sweater, asleep on a branch adorned with holiday lights: “I survived another year - that’s your present” features a sausage dog with pink presents and a pink hatRay also inspired the design of a shirt that says “Yes, I’ve tried yoga,” that has a flower on it flipping the peace sign. All shirts are available in long and short sleeve shirts, sweatshirts, and hoodies.You can find Ray on Instagram here: https://www.instagram.com/rayandstormi/And on TikTok here: https://www.tiktok.com/@rayandstormi This video helps tell Ray’s covid story: https://www.tiktok.com/@rayandstormi/video/7144530664161889578 Please share this episode, or Ray’s gofundme, if you can. And if you can donate, I know that it will be greatly appreciated. Thanks for joining me for this chat, Ray - we need to arrange more of them!Don't forget to like, subscribe, follow, and share A Friend for the Long Haul if you can. And if you're feeling extra generous, leave a review. Your support helps get this in front of more earballs and helps me bring more episodes.You can listen to the A Friend for the Long Haul Long Covid Theme Songs playlist on Spotify: https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K?si=7948dbf2222c4392If you'd like to support this low budget/high love podcast, you can check out my Bonfire shirt for silly long covid apparel: https://www.bonfire.com/store/a-friend-for-the-long-haul/or my Amazon wishlist: https://www.amazon.com/hz/wishlist/ls/3MYBB5G0P7YUD?ref_=wl_share
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Nov 18, 2024 • 2h 28min

Season's Grievings and Chronic Feelings - Preparing for the Holidays with Long Covid

Welcome to a special pre-holidays ep of A Friend for the Long Haul! This is just shy of 2.5 hours but full of good chats. Here’s the guest list! Caryn Zaner (0:01:01) is a clinical psychologist specializing in helping folks with identity & values alignment, anxiety, & group therapy. Find their professional Instagram account here. My obsession with Caryn started with this post on still Coviding and attachment theory. We discuss the stinky onion of grief, lost friendships, & values alignment. We get into setting boundaries - are we asking permission instead of actually setting them? Is it effective to appeal to empathy to “make your case” & or is it a waste of spoons? We dive into how difficult it is to make friends as adults. Caryn talks about the Wednesday night peer support group they facilitate & sends out a call to join a cross-generational queer group they want to start! Wanda Belisle (0:26:23) is a registered health coach, dealing with ME/CFS for several years & shares her experience to help people with ME & Long Covid pace. I’m not a client of Wanda’s, but I find her posts helpful, & it's refreshing that when she’s in a flare or crash, she shares it . In the ‘wellness’ space that is rare for fear of diminishing returns on a ‘product.’ We discuss pacing during the holidays. The focus is on parenting, but is relevant to all . Wanda explains how she’s saved spoons by asking herself how she wants to feel, talking as a family about what’s important , & how she reviews that. She offers tips on asking for help, delegating, being your own “Santa” & explaining pacing to family. As a gift, Wanda is sharing a pdf guide: Thriving this Season with ME/CFS and Long Covid for free. You can download it here.  Chimére & Tory Sweeney (0:57:54) joined me for a full-length episode, coming out soon. In this excerpt, we discuss what they have planned for the holidays - or - what they DO NOT have planned.  Kathleen Banks (1:02:35) has been working in public health for about 20 years & while we were having a casual conversation about grief (as you do) she mentioned the concentric circles of grief. We about it & it really helped me understand why I get so annoyed when other people put their grief about my illness back on me. We discuss appealing to empathy again, self-compassion (hello Kristen Neff), & touch on identifying your needs - something we’ll talk about in an episode soon. Notes & links from Kathleen: My recent commentary on research priorities for Long COVID, *note for podcast that all my opinions expressed during our interview are mine & do not represent those of any of my affiliations, organizations or co-authors. “How not to say the wrong thing,” LA Times article on Ring Theory. Mara Glatzel’s work. Care Work: Dreaming Disability Justice by Leah Lakshmi Piepnza-Samarasinha.  Jillian & Natalie ( 1:30:09) are my local long hauler bffs. We discuss how this illness has affected our relationships with family & friends, being a lifeline for each other, our “words” for 2024, spending time together over the holidays, & friends who “get it.”  Lesa Schultz ( 1:52:52) was my first ever podcast guest & is one of my dearest long hauler friends. Lesa has an invitation to everyone to join a Sunday night long covid support group she facilitates, & has an update on what it’s been like moving across the country to be closer to family while still upholding Covid boundaries.  The end (2:08:48) is a gift from Dr. Laurie Nadel, who has been on the podcast. Dr. Nadel is a psychotherapist. She & Lesa have been building a YouTube channel of meditations, & we have an exclusive for your holiday szn. It is 18 minutes long. Like, subscribe, share episodes pls! If you can, leave a review to help get it in more earballs. Listen to the podcast's Long Covid Theme Songs playlist on Spotify. To support this low budget/high love pod, check out my Bonfire shop for LC apparel or my Amazon wishlist. Thank you!
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Nov 4, 2024 • 1h 6min

Getting to the CoRE of Long Covid with Dr. David Putrino

Dr. David Putrino, a leading professor in Rehabilitation at Mount Sinai, discusses the transformative impact of COVID-19 on healthcare. He shares his journey from physical therapy to pioneering research, emphasizing patient-centered innovations. The conversation dives into navigating the complexities of Long Covid, the emotional burden it brings, and the importance of community involvement. He also discusses promising treatments like lumbarkinase and rapamycin, highlighting hope for recovery and the vital connection between music and healing.
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Oct 28, 2024 • 1h 40min

Covid Conscious Community Care featuring JaydoCovid

Welcome to season 2 episode 8 of A Friend for the Long Haul - A Long Covid Podcast! This week I chat with Jaydo, who you probably know from TikTok and Instagram. Jaydo creates videos focused on "Things You Should Know About Covid," and they've been incredibly successful. In this episode we discuss: The Power of Community: Learn how Jaydo's COVID-conscious community is making a difference, including more about the CC Circle, his 0% lending circle for expensive Covid safety gear The Unexpected Influencer: what it's like to become a source of news for thousands Navigating a Divided World: We explore the challenges of being COVID-conscious in a society that often dismisses safety measures - including what it's like to date Listener-submitted questions: Jaydo and I answer questions about to handle difficult social situations, finding love while being cautious, and raising COVID-conscious kids (special mentions to @decolonize__ https://www.instagram.com/decolonize__/ and ShiShi Rose https://www.instagram.com/shishi.rose/ who both post wonderful round-ups of books and resources for children) A Deeper Dive: Delve into the socio-political implications of the pandemic and the importance of critical thinking A friendly reminder: This episode is a bit longer than usual at about an hour and a half. Feel free to listen in chunks to preserve your spoons. You can find Jaydo on TikTok at: https://www.tiktok.com/@JaydoCovid and on Instagram at: https://www.instagram.com/jaydocovid/ Here is his linktree and his YouTube channels: https://www.youtube.com/@JaydoCovid https://www.youtube.com/@jaydomusic Don't forget to like, subscribe, follow, and share A Friend for the Long Haul if you can. And if you're feeling extra generous, leave a review. Your support helps get this in front of more earballs and helps me bring more episodes. You can listen to the A Friend for the Long Haul Long Covid Theme Songs playlist on Spotify: https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K?si=7948dbf2222c4392 If you'd like to support this low budget/high love podcast, you can check out my Bonfire shirt for silly long covid apparel: https://www.bonfire.com/store/a-friend-for-the-long-haul/ or my Amazon wishlist: https://www.amazon.com/hz/wishlist/ls/3MYBB5G0P7YUD?ref_=wl_share Thanks again for listening!

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