OPENPediatrics

In this World Shared Practice Forum Podcast, experts from three large pediatric hospitals discuss their collaborative care models designed to optimize care for patients undergoing hematopoietic stem cell transplant. This global panel reviews the history, structure, and current state of these models, and offers insight into how clinicians can develop and improve their own collaborative care models. LEARNING OBJECTIVES - Identify the importance of collaborative care models for hematopoietic stem cell transplant patients - Discuss the status of current care models in three pediatric stem cell transplant programs - Apply insights on how clinicians develop collaborative care models and steps that can be taken to make ongoing improvements AUTHORS Asya Agulnik, MD, MPH Associate Member, St. Jude Faculty Director, Global Critical Care Program Director, Euro Regional Program St. Jude Children’s Research Hospital Indira Jayakumar, MD Lead Pediatric Intensivist Apollo Specialty Cancer Hospitals Co Convenor- IAP Transplant Critical Care, Chairman- Pediatric wing, ECMO Society of India Chennai, Tamil Nadu, India Leslie Lehmann, MD Attending Physician, Pediatric Stem Cell Transplant Center Boston Children's Hospital/Dana Farber Cancer Institute Associate Professor of Pediatrics Harvard Medical School Revathi Raj, MBBS, DCH, PLAB, MRCP, FRCPath Senior Consultant Department of Pediatric Hematology and Oncology and Blood and Marrow Transplantation Apollo Hospitals Chennai, Tamil Nadu, India Adrienne Randolph, MD, MSc Senior Associate in Critical Care Medicine, Department of Anesthesiology, Critical Care and Pain Medicine Boston Children's Hospital Professor of Anaesthesia and Pediatrics Harvard Medical School Aimee C. Talleur, MD Assistant Member, Department of Bone Marrow Transplantation and Cellular Therapy Fellowship Director, BMTCT Fellowship Program St. Jude Children's Research Hospital DATES Initial publication: August 26, 2024. ARTICLES REFERENCED • Zinter MS, McArthur J, Duncan C, et al. Candidacy for Extracorporeal Life Support in Children After Hematopoietic Cell Transplantation: A Position Paper From the Pediatric Acute Lung Injury and Sepsis Investigators Network’s Hematopoietic Cell Transplant and Cancer Immunotherapy Subgroup. Pediatr Crit Care Med. 2022;23(3):205-213. doi:10.1097/PCC.0000000000002865 (13:04) • St. Jude Global Critical Care program, https://global.stjude.org/en-us/programs/transversal-programs/critical-care.html, Email: globalcriticalcare@stjude.org (25:49) Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Agulnik A, Jayakumar I, Lehmann L, Raj R, Randolph AG, Talleur AC, Wolbrink TA. Collaborative Care Models to Optimize Care of Hematopoietic Stem Cell Transplant Patients. 08/2024. OPENPediatrics. Podcast https://soundcloud.com/openpediatrics/collaborative-care-models-to-optimize-care-of-hsct-patients-by-t-wolbrink-et-al-openpediatrics.

In this Complex Care Journal Club podcast episode, Dr. Kate Nelson discusses a qualitative study exploring decision-making skills developed by family caregivers of children with medical complexity. She describes the impact of contextual factors and relationships within care teams on decision-making, family partnership in research, and the next steps from this work. SPEAKER Kate Nelson, MD, PhD Staff Pediatrician, Paediatric Advanced Care Team The Hospital for Sick Children Scientist SickKids Research Institute Assistant Professor University of Toronto HOST Kathleen Huth, MD, MMSc Pediatrician, Complex Care Service, Division of General Pediatrics Boston Children's Hospital Assistant Professor of Pediatrics Harvard Medical School DATE Initial publication date: August 5, 2024. Journal Club Article Finlay M, Chakravarti V, Buchanan F, Dewan T, Adams S, Mahant S, Nicholas D, Widger K, McGuire KM, Nelson KE. Learning to Trust Yourself: Decision-Making Skills Among Parents of Children With Medical Complexity. J Pain Symptom Manage. 2024 May 28:S0885-3924(24)00792-9. doi: 10.1016/j.jpainsymman.2024.05.023. Epub ahead of print. PMID: 38810951. TRANSCRIPT https://op-docebo-images.s3.amazonaws.com/Transcripts/Choice+and+Voice+Family+Perspectives+on+Decision-making+for+Children+_nelson_080524.pdf Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6 Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Nelson K, Huth K. Choice and Voice: Family Perspectives on Decision-making for Children with Medical Complexity. 8/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/choice-and-voice-family-perspectives-on-decision-making-for-children-with-medical-complexity

Explore the ins and outs of tonsillectomy, including vital anatomical insights and indications for surgery. Learn about anesthesia strategies tailored for pediatric patients, especially those with complex airways. Discover the two main techniques for tonsil removal, weighing their benefits and risks. Postoperative care takes center stage, highlighting how to manage complications like airway obstruction and bleeding. This informative chat equips listeners with essential knowledge for better patient outcomes.

In this Complex Care Journal Club podcast episode, Ms. Bethlyn Vergo Houlihan and Ms. Meg Comeau discuss a qualitative study of the perspectives of families of children with medical complexity on what is needed to promote their quality of life and well-being. They describe the family-led approach to designing and conducting the study, the importance of upholding human dignity as a major theme, and next steps to translate their findings into systems change. SPEAKERS Bethlyn Vergo Houlihan, MSW, MPH Project Director, Principal Investigator Center for Innovation in Social Work & Health Boston University School of Social Work Meg Comeau, MHA Senior Project Director/Principal Investigator Center for Innovation in Social Work and Health Boston University School of Social Work HOST Kristina Malik, MD Assistant Professor of Pediatrics, University of Colorado School of Medicine Medical Director, KidStreet Pediatrician, Special Care Clinic, Children's Hospital Colorado DATE Initial publication date: July 1, 2024. JOURNAL CLUB ARTICLES Houlihan BV, Coleman C, Kuo DZ, Plant B, Comeau M. What Families of Children With Medical Complexity Say They Need: Humanism in Care Delivery Change. Pediatrics. 2024 Jan 1;153(Suppl 1):e2023063424F. doi: 10.1542/peds.2023-063424F. PMID: 38165241. Randolph G, Coleman C, Allshouse C, Plant B, Kuo DZ. Measuring What Matters to Children With Medical Complexity and Their Families. Pediatrics. 2024 Jan 1;153(Suppl 1):e2023063424C. doi: 10.1542/peds.2023-063424C. PMID: 38165239. TRANSCRIPT chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://op-docebo-images.s3.amazonaws.com/Transcripts/Upholding+Human+Dignity+for+Children+with+Medical+Complexity+and+their+Families_070124.pdf Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6 Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Houlihan BV, Comeau M, Malik K. Upholding Human Dignity for Children with Medical Complexity and their Families. 7/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/upholding-human-dignity-for-children-with-medical-complexity-and-their-families

Dive into the complexities of inflammatory bowel disease (IBD) as experts dissect its types, symptoms, and treatment strategies. Learn about the differences between Crohn's disease and ulcerative colitis, alongside effective diagnostic evaluations. Explore a variety of treatment options, from medications to dietary changes and surgical interventions. The discussion emphasizes enhancing patient quality of life and the role of supportive organizations in educating those affected by IBD.

In this engaging discussion, Dr. Peta Alexander, a senior cardiologist at Boston Children’s Hospital, Dr. Elizabeth Mack, a pediatric critical care physician, and Dr. Rahul Damania from Cleveland Clinic Children's Hospital delve into the art of podcasting in the medical field. They share insights on building a successful podcast, utilizing social media for promotion, and emphasizing academic recognition for podcast work. Their advice includes maintaining authenticity and collaboration while highlighting the growing role of podcasts in bridging medical knowledge and practice.

In this Complex Care Journal Club podcast episode, Dr. Sarah Sobotka discusses a mixed-methods study with longitudinal assessment of neurodevelopmental profiles of children requiring mechanical ventilation after hospital discharge and perceived influences on development. She describes lessons learned while designing and performing the study, the need for dedicated therapeutic strategies for this patient population, and next steps from this work. SPEAKER Sarah Sobotka, MD, MSCP Assistant Professor Section of Developmental and Behavioral Pediatrics, Department of Pediatrics, University of Chicago HOST Kilby Mann, MD Assistant Professor Pediatric Rehabilitation Medicine Children's Hospital Colorado DATE Initial publication date: June 10, 2024. JOURNAL CLUB ARTICLES Sobotka SA, Lynch E, Liao C, Graham RJ, Msall ME. Autism and neurodevelopmental disability risks in children with tracheostomies and ventilators. Pediatr Pulmonol. 2024 Mar 1. doi: 10.1002/ppul.26921. Epub ahead of print. PMID: 38426806. Sobotka SA, Lynch E, Msall ME, Graham RJ. Early childhood developmental skills of children with tracheostomies and ventilators recently discharged home. Pediatr Pulmonol. 2023 Mar;58(3):853-865. doi: 10.1002/ppul.26265. Epub 2022 Dec 28. PMID: 36448249; PMCID: PMC10680148. TRANSCRIPT Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6 Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Sobotka SA, Mann K. Need for Neurodevelopmental Follow-up for Children with Invasive Mechanical Ventilation. 6/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/need-for-neurodevelopmental-follow-up-for-children-with-invasive-mechanical-ventilation

Pediatric critical care specialist, Sapna Kudchadkar, and Dr. Kate Madden discuss early mobilization in PICUs, emphasizing interdisciplinary collaboration, risks of delirium, benefits of patient engagement, and challenges of the PICU UP! program. They stress on the importance of shared mental frameworks, sustainability, and the need for delirium screening and management. It explores program development, sustaining innovations in healthcare, multidisciplinary collaboration benefits, and investigating long-term outcomes in pediatric ICU patients.

In this special Complex Care Journal Club podcast episode, co-hosts Kristie Malik, Emily Goodwin and Kathleen Huth interview presenters of posters and oral abstracts relevant to the care of children with medical complexity at the Pediatric Academic Societies (PAS) 2024 annual meeting. Speakers describe the implications of their study findings, messages for patients and families, and priority areas for research that they hope can be investigated further by the complex care community in the coming years. SPEAKERS Mary Arakelyan, MPH Research Project Manager Dartmouth Health Children's Tammie Dewan, MD, MSc Clinical Assistant Professor Department of Pediatrics, University of Calgary Pediatrician, Alberta Children's Hospital Caleb Easterly, BA MD/PhD Student University of North Carolina School of Medicine Kevin Huynh, MS Medical Student University of Pittsburgh School of Medicine Ruchi Kaushik, MD, MEd, MPH Medical Director of Education and Research Imagine Pediatrics, Houston TX Joanna Leyenaar, MD, PhD Professor, Department of Pediatrics Dartmouth Health Children's Savithri Nageswaran, MD, MPH Professor, Department of Pediatrics Wake Forest University School of Medicine Julia Reedy, MA Qualitative Analyst ACCORDS, University of Colorado S. Margaret Wright, MD, MPH Clinical Assistant Professor of Pediatrics University of Missouri-Kansas City School of Medicine Justin Yu, MD, MS Assistant Professor of Pediatrics UPMC Children’s Hospital of Pittsburgh HOSTS Kristina Malik, MD Pediatrician, Special Care Clinic, Children's Hospital Colorado Emily J Goodwin, MD Pediatrician, General Academic Pediatrics Beacon Program Children’s Mercy Kansas City Kathleen Huth, MD, MMSc Pediatrician, Complex Care Service, Division of General Pediatrics Boston Children's Hospital DATE Initial publication: May 15, 2024. REFERENCES Fehlings D, Agnew B, Gimeno H, Harvey A, Himmelmann K, Lin JP, Mink JW, Monbaliu E, Rice J, Bohn E, Falck-Ytter Y. Pharmacological and neurosurgical management of cerebral palsy and dystonia: Clinical practice guideline update. Dev Med Child Neurol. 2024 Apr 19. doi: 10.1111/dmcn.15921. Epub ahead of print. PMID: 38640091. Pediatric Academic Societies. Who we are. Accessed May 6, 2024. https://www.pas-meeting.org/about/ TRANSCRIPT Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6 Please visit: www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access, thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Malik K, Goodwin EJ, Arakelyan M, Dewan T, Easterly C, Huynh K, Kaushik R, Leyenaar J, Nageswaran S, Reedy J, Wright SM, Yu J, Huth K. Practice-Changing Research in Complex Care at the Pediatric Academic Societies 2024 Annual Meeting. 5/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/practice-changing-research-in-complex-care-at-the-pediatric-academic-societies-2024-annual-meeting

Discover the pivotal role of good nutrition in pediatric intensive care during a vital discussion. Learn about the unique energy needs of critically ill children and the challenges of weight monitoring in the ICU. Explore the effects of illness on muscle mass and recovery, highlighting innovative strategies to enhance nutritional support. Get insights from experts on improving practices and ensuring the best outcomes for vulnerable young patients. It's a deep dive into how nutrition can be a game changer in critical care!