OPENPediatrics

In this Complex Care Journal Club podcast episode, Dr. Cristina Sarmiento discusses a qualitative study exploring experiences of young adults with cerebral palsy and their caregivers with transition to adult care. She describes the major barriers and facilitators to transition, challenges and opportunities related to conducting the study, implications for practice, and next steps from this work. SPEAKER Cristina Sarmiento, MD Assistant Professor University of Colorado Anschutz Medical Campus HOST Emily J. Goodwin, MD Clinical Associate Professor of Pediatrics University of Missouri Kansas City School of Medicine Pediatrician, General Academic Pediatrics Beacon Program Children’s Mercy Kansas City DATE Initial publication date: March 10, 2025. ARTICLE REFERENCED Sarmiento CA, Wyrwa JM, Glaros C, Holliman BD, Brenner LA. Experiences of young adults with cerebral palsy in pediatric care transitioning to adult care. Dev Med Child Neurol. 2025 Jan;67(1):99-110. doi: 10.1111/dmcn.15907. Epub 2024 Mar 24. PMID: 38523396.‌ TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/as/63kfcjrfv57nh4t8qbrhrvj/March_CCJCP_Sarmiento_transcript_Final_3-5‌ Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6 Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Sarmiento, C, Goodwin EJ. Let’s Talk about Transition: Experiences of Young Adults with Cerebral Palsy and their Caregivers. 3/2025. OPENPediatrics. Online Podcast.

In this enlightening discussion, Dr. Akash Deep, a pediatric intensive care expert from King's College Hospital, and Dr. James Squires, a specialist in pediatric hepatology from UPMC, dive into the complex world of pediatric liver transplants. They explore critical factors influencing transplant eligibility for children with acute liver failure, emphasizing a multidisciplinary approach. Ethical dilemmas, contraindications, and the balance between technical feasibility and patient prognosis are key topics, shedding light on the intricate decision-making processes in this life-saving field.

In this Complex Care Journal Club podcast episode, Ms. Pearce and Dr. Synnes discuss a series of patient-oriented research studies aimed at partnering with parents in reimagining meaningful outcomes for premature infants. They describe the inclusion of parents on the study team, recruitment of parent participants, lessons and challenges while conducting the study, messages for other researchers and parents, and the next steps from this work. SPEAKERS Rebecca Pearce, B. Ed, MSc Vice Principal Villa Maria High School Parent Partner CHU Sainte-Justine and Canadian Premature Babies Foundation‌ Anne Synnes, MDCM, MHSc Clinical Professor, Neonatologist University of British Columbia British Columbia's Women's Hospital and British Columbia's Children's Hospital Research Institute HOST Kilby Mann, MD Assistant Professor Pediatric Rehabilitation Medicine Children's Hospital Colorado DATE Initial publication date: February 10, 2025. ARTICLES REFERENCED Pearce R, Synnes A, Lam MM, Richter LL, Bacchini F, Jones M, Luu TM, Janvier A; PARENTS’ VOICE NETWORK. Partnering With Parents to Change Measurement and Reporting of Preterm Birth Outcomes. Pediatrics. 2024 Nov 1;154(5):e2024067093. doi: 10.1542/peds.2024-067093. PMID: 39354888. Haslam MD, Lisonkova S, Creighton D, Church P, Yang J, Shah PS, Joseph KS, Synnes A; Canadian Neonatal Network and the Canadian Neonatal Follow-Up Network. Severe Neurodevelopmental Impairment in Neonates Born Preterm: Impact of Varying Definitions in a Canadian Cohort. J Pediatr. 2018 Jun;197:75-81.e4. doi: 10.1016/j.jpeds.2017.12.020. Epub 2018 Feb 3. PMID: 29398054. TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/as/p65m4p98gppf65mz3zhmm9g/February_Pearce_and_Synnes_ccjcp_final_revisions‌ Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Pearce R, Synnes A, Mann K. Focus on Abilities: Parent-Identified Outcomes of Preterm Infants. 2/2025. OPENPediatrics. Online Podcast: https://soundcloud.com/openpediatrics/focus-on-abilities-parent-identified-outcomes-of-preterm-infants

Dr. Peta Alexander, a Senior Associate Cardiologist and ECMO Program Director at Boston Children’s Hospital, and Dr. Ryan Barbaro, Service Chief of Pediatric Critical Care Medicine at C.S. Mott Children's Hospital, delve into the intricacies of pediatric ECMO. They discuss the critical differences between pediatric and adult eCPR, challenges in supply chain management, and the urgent need for standardized practices. Their dialogue highlights collaborative efforts in defining ECMO-associated complications and the promise of ongoing research to enhance pediatric care.

Felesia Bowen, President-elect of NAPNAP and a professor at the University of Alabama at Birmingham, explores the vital roles nurse practitioners play in healthcare and policy. She advocates for a standardized scope of practice to enhance NP effectiveness. The discussion highlights the importance of increasing workforce diversity to address health disparities and the significant contributions nurse practitioners make in community engagement and telehealth. Bowen also emphasizes health equity and the need for legislative support to optimize NP practices.

In this Complex Care Journal Club podcast episode, Dr. Kathleen C. Thomas discusses a cross-sectional study of associations between neighborhood context with psychotropic polypharmacy and psychotherapy among children with high-needs for medical or psychiatric care. She describes the inclusion of parent advisors on the study team, the inclusion of children with medical complexity in the study population, key insights including the importance of non-medical supports, and the next steps from this work. SPEAKER Kathleen C. Thomas, PhD, MPH Professor and Vice Chair of Research and Graduate Education Division of Pharmaceutical Outcomes and Policy Eshelman School of Pharmacy University of North Carolina at Chapel Hill HOST Kristina Malik, MD Assistant Professor of Pediatrics, University of Colorado School of Medicine Medical Director, KidStreet Pediatrician, Special Care Clinic, Children's Hospital Colorado DATE Initial publication date: January 13, 2025. ARTICLE REFERENCED Thomas KC, Annis IE, deJong NA, Christian RB, Davis SA, Hughes PM, Prichard BA, Prichard JR, Allen PS, Gettinger JS, Morris DN, Eaker KB. Association Between Neighborhood Context and Psychotropic Polypharmacy Use Among High-Need Children. Psychiatr Serv. 2024 Sep 11:appips20230639. doi: 10.1176/appi.ps.20230639. Epub ahead of print. PMID: 39257315. TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/as/3rffshwp3q2km53w7xckq38/011025_CCJCP__Where_You_Live_Matters Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6 Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Thomas KC, Malik KE. Where You Live Matters: Psychotropic Polypharmacy and Psychotherapy in Children with High-Needs‌. 01/2025. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/where-you-live-matters-psychotropic-polypharmacy-and-psychotherapy-in-children-with-high-needs.

In this video, the viewer will learn the epidemiology, pathophysiology, and clinical presentation of croup, and how to diagnose and care for affected children. Initial publication: August 6, 2018. A multilingual transcript is available for this video, thanks to the generous support of our community members who volunteered their time to translate our content. Learn more about our OPENPediatrics translation campaign here: https://www.openpediatrics.org/content-translation Please visit: www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu Please note: OPENPediatrics does not support nor control any related videos in the sidebar, these are placed by Youtube. We apologize for any inconvenience this may cause.

In this podcast, the viewer will learn the epidemiology, pathophysiology, clinical presentation and management of neonatal jaundice. Direct links to chapters: 0:00 Chapter 1: Introduction 3:33 Chapter 2: Bilirubin Metabolism 5:41 Chapter 3: Pathophysiology 8:36 Chapter 4: History and Physical Exam 10:40 Chapter 5: Diagnostic Testing 12:29 Chapter 6: Management Initial publication: January 10, 2019. A multilingual transcript is available for this video, thanks to the generous support of our community members who volunteered their time to translate our content. Learn more about our OPENPediatrics translation campaign here: https://www.openpediatrics.org/content-translation Please visit: www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu

In this Complex Care Journal Club podcast episode, Drs. Marcella Luercio and Bianca Quiñones-Pérez discuss a qualitative study of barriers to communication perceived by Spanish-speaking families with children with medical complexity admitted to the hospital. They describe the importance of multilingual representation in research, individual and systems-level changes to improve communication with families who speak languages other than English, and next steps from this work. SPEAKERS Marcella Luercio, MD Pediatric Hospitalist Boston Children's Hospital Bianca Quiñones-Pérez, MD Pediatric Hospitalist, Complex Care Services, Boston Children's Hospital Instructor of Pediatrics, Harvard Medical School HOST Kathleen Huth, MD, MMSc Pediatrician, Complex Care Service, Division of General Pediatrics Boston Children's Hospital Assistant Professor of Pediatrics Harvard Medical School DATE Initial publication date: December 9, 2024. JOURNAL CLUB ARTICLE Luercio M, Quiñones-Pérez B, Castellanos A, Ngo T, Elder B, Blaine K, Haskell H, Lopez K, Luff D, Mallick N, Mercer AN, Williams DN, Baird JD, Khan A. Communicating With Spanish-Speaking Families of Hospitalized Children With Medical Complexity. Hosp Pediatr. 2024 Aug 1;14(8):612-621. doi: 10.1542/hpeds.2023-007700. PMID: 39069815. OTHER REFERENCES Ames SG, Delaney RK, Houtrow AJ, Delgado-Corcoran C, Alvey J, Watt MH, Murphy N. Perceived Disability-Based Discrimination in Health Care for Children With Medical Complexity. Pediatrics. 2023 Jul 1;152(1):e2022060975. doi: 10.1542/peds.2022-060975. PMID: 37357731. Khan A, Baird J, Kelly MM, Blaine K, Chieco D, Haskell H, Lopez K, Ngo T, Mercer A, Quiñones-Pérez B, Schuster MA, Singer SJ, Viswanath K, Landrigan CP, Williams D, Luff D. Family Safety Reporting in Medically Complex Children: Parent, Staff, and Leader Perspectives. Pediatrics. 2022 Jun 1;149(6):e2021053913. doi: 10.1542/peds.2021-053913. PMID: 35615941; PMCID: PMC11088436. Nelson K, Huth K. Choice and Voice: Family Perspectives on Decision-making for Children with Medical Complexity. 8/2024. OPENPediatrics. Online Podcast. https://youtu.be/WN5u0T4UnEU, https://soundcloud.com/openpediatrics/choice-and-voice-family-perspectives-on-decision-making-for-children-with-medical-complexity Ragavan MI, Méndez DD, Caballero TM. Promoting Language Justice for Children With Medical Complexity and Their Families: An Urgent Call to Action. Hosp Pediatr. 2024 Aug 1;14(8):e358-e361. doi: 10.1542/hpeds.2024-007792. PMID: 39069818; PMCID: PMC11287058. "Strategies for Working Effectively With Interpreters", a free course on OPENPediatrics.org https://learn.openpediatrics.org/learn/courses/5662/strategies-for-effectively-working-with-interpreters/lessons TRANSCRIPTS English: https://cdn.bfldr.com/D6LGWP8S/as/7zjc5vr6xxgqmsmn87pbfm/120924_CCJCP__Bridging_the_Communication_Gap__The_Role_of_Language_in_Complex_Care Spanish: https://cdn.bfldr.com/D6LGWP8S/as/7zjc5vr6xxgqmsmn87pbfm/120924_CCJCP__Bridging_the_Communication_Gap__The_Role_of_Language_in_Complex_Care?position=3 Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6 CITATION Luercio M, Quiñones-Pérez B, Huth K. Bridging the Communication Gap: The Role of Language in Complex Care. 12/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/bridging-the-communication-gap-the-role-of-language-in-complex-care.

In this engaging discussion, Dr. Mark Peters, a leading expert in Pediatric Intensive Care from University College London, sheds light on the groundbreaking Oxy-PICU trial. He delves into the evolution of oxygenation strategies for critically ill children, highlighting a shift towards conservative targets that can reduce mortality and costs. The conversation emphasizes the significance of pragmatic trial design and the real-world implications of research findings, aiming to transform clinical practices in pediatric critical care.