Bendy Bodies with Dr. Linda Bluestein

In this episode, Dr. Linda Bluestein interviews Dr. Roger Seheult about the importance of sleep for people with chronic illness, chronic pain, and joint hypermobility.  Dr Seheult, a quadruple board-certified physician with expertise in sleep medicine, discusses various topics related to sleep, including the circadian rhythm, the impact of light on sleep, the effect of blue light on sleep, ideal bedtime, the impact of electronics on sleep, the role of melatonin, and the timing of eating and its effect on sleep.  Other topics include challenges of working from home, sleep schedules and chronic illness, shifting sleep patterns, sleep apnea and its relationship with chronic illness, sleep medications, sleep watches and monitoring devices, sleep positions and joint instability, and the importance of sleep education in medical training. Dr. Seheult provides valuable insights and recommendations for improving sleep quality and managing sleep-related issues.YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Takeaways:Sleep is crucial for people with chronic illness, chronic pain, and joint hypermobility.Understanding the circadian rhythm is important for optimizing sleep.Light, especially blue light, can significantly impact sleep quality.The suprachiasmatic nucleus plays a key role in regulating the sleep-wake cycle.Morning light exposure is important for setting the body's internal clock.The timing of eating can affect sleep quality.Establishing a consistent sleep schedule and avoiding late-night eating can improve sleep quality.Shifting sleep patterns can be challenging, especially for individuals with chronic illness.Sleep apnea is common in individuals with chronic illness and connective tissue disorders like Ehlers-Danlos Syndromes.Home sleep studies can be effective in detecting sleep apnea, but in-lab studies may be necessary for individuals at higher risk of central apnea.Sleep medications should be used cautiously due to potential side effects and dependency issues.Sleep watches and monitoring devices can provide valuable insights into sleep patterns and quality.Proper sleep positions, pillows, and mattresses can help alleviate joint instability and pain during sleep.Education on sleep disorders and their relationship with chronic illness should be improved in medical training.Patient advocacy and sharing information through podcasts can help raise awareness and improve access to sleep education.Chapters00:00 Introduction of Dr. Roger Seheult03:22 Understanding the Circadian Rhythm07:02 Impact of Light on Sleep09:20 The Suprachiasmatic Nucleus and its Role in Sleep09:49 The Importance of Light for People with Chronic Illness13:35 The Effect of Blue Light on Sleep15:28 Ideal Bedtime for Optimal Sleep17:25 The Impact of Electronics on Sleep19:26 The Role of Melatonin in Sleep20:05 The Importance of Morning Light23:29 The Timing of Eating and its Effect on Sleep24:00 Challenges of Working from Home and Small Meals25:20 Sleep Schedule and Chronic Illness28:57 Falling Asleep While Watching TV31:49 Sleep Apnea and Chronic Illness39:05 Sleep Apnea and Temporomandibular Dysfunction44:09 EDS and Central Sleep Apnea44:30 Elevating the Head of the Bed45:23 Alignment Problems and Breathing47:37 Sleep Medications and Side Effects1:00:15 Supplements for Sleep1:02:01 Sleep Watches and Monitoring Devices1:03:01 Sleep Positions and Joint Instability1:04:46 Paresthesias and Numbness in Sleep1:05:11 Pillow Recommendations for Cervical Instability1:07:35 Waking Up in Pain1:09:58 Sympathetic Nervous System Activation1:12:23 Safety of Melatonin1:14:49 Improving Education on EDS and HSDConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority! 🧬🔬🦓Resources:  www.medcram.comhttps://www.youtube.com/@Medcramhttps://www.optum.com/care/locations/california.htmlhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC6175781/https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7052958/https://www.itamar-medical.com/professionals/watchpat-300/https://youtu.be/OIwHYaDyswA?si=xSOW5miP4otLEKR6#BendyBodiesPodcast  Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode, Professor Tiffany Lee is interviewed about service dogs and disability rights and accommodations. They discuss the Americans with Disabilities Act, the definition of disability, and disability benefits. They also explore reasonable accommodations in the workplace and education settings, as well as the challenges and advocacy involved. The conversation covers topics such as disclosing disabilities to employers and universities, getting a service dog, dealing with unresponsive disability lawyers, appealing denied disability benefits, and correcting inaccuracies in medical records. The episode provides valuable insights and guidance for individuals with disabilities navigating legal and practical aspects of their rights and accommodations. Professor Lee wanted to clarify the following points from the discussion of Social Security disability. SSI places limits on assets ($2000 for an individual) and income. SSDI does not have an asset limit but requires the recipient not be able to engage in “substantial gainful activity,” which generally acts as an income limit. There is a “Ticket to Work” program called “Choose Work” available that provides some options similar to those in the earlier “Ticket to Work” program mentioned in this episode.YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Key points discussed: **Americans with Disabilities Act (ADA):** The conversation explores the ADA, a crucial piece of legislation that prohibits discrimination against individuals with disabilities and mandates reasonable accommodations.**Disability Benefits:** The episode delves into disability benefits, including the process of applying, appealing denied benefits, and addressing inaccuracies in medical records.**Workplace and Education Accommodations:** Reasonable accommodations in both workplace and education settings are explored, shedding light on the challenges and advocacy involved.**Disclosure to Employers and Universities:** Professor Tiffany Lee provides insights into the considerations and potential challenges of disclosing disabilities to employers and universities.**Service Dogs:** The episode discusses obtaining a service dog and the associated considerations.**Dealing with Disability Lawyers:** Challenges related to unresponsive disability lawyers are addressed, offering guidance on how to navigate such situations.**Financial Impact of Disability:** The limitations and financial impact of applying for disability, including asset limits and restrictions on work and income, are discussed.**Flaws in the Disability System:** Issues within the disability system, such as the poverty threshold and its impact on marriage, are highlighted.**Emergency Response Accessibility:** Making disaster and emergency response accessible to people with disabilities is discussed.Overall, the episode provides an exploration of the legal, practical, and personal aspects of disability rights and accommodations, offering valuable insights and guidance for individuals with disabilities.Chapters00:00 Introduction and Overview01:14 Americans with Disabilities Act03:28 Reasonable Accommodations in the Workplace04:38 Determining Reasonable Accommodations09:07 Accommodations in High School and College11:22 Challenges with Disability Services in Education13:59 Advocating for Accommodations in Education16:36 Disclosing Disabilities to Employers and Universities19:03 Determining Job Compatibility with Accommodations21:03 Getting a Service Dog23:37 Regulations and Considerations for Service Dog Training36:33 Dealing with Unresponsive Disability Lawyers38:07 Appealing Denied Disability Benefits40:03 Legal Recourse for Undertreatment of Pain43:07 Accommodations for Productivity Standards43:45 Correcting Inaccuracies in Medical Records47:46 Knowing When to Get an Accommodation or Apply for Disability48:36 Considerations for Applying for Disability50:23 Assets and Poverty Threshold for Disability58:58 Making Disaster and Emergency Response Accessible01:02:44 Hypermobility Hack: Walking DeskConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority! 🧬🔬🦓Resources:  For disability rights in general: https://www.ada.gov and https://adata.org/For service dogs: https://www.ada.gov/resources/service-animals-2010-requirements/ and https://www.ada.gov/resources/service-animals-faqs/For disability rights in employment: https://www.dol.gov/general/topic/disability/ada and https://www.eeoc.gov/laws/guidance/your-employment-rights-individual-disabilityhttps://choosework.ssa.gov/#BendyBodiesPodcast #HealthAdvocacy #DisabilityRights #ADAInsights #AccommodationsTalk #LegalAdvocacy #ServiceDogJourney #DisabilityBenefits #WorkforceChallenges  Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode, psychologist Josh Spell discusses disordered eating in dance. Josh shares insights into the coping mechanisms behind eating disorders and offers advice for directors, teachers, and friends who suspect someone may be struggling with an eating disorder. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.YOUR guest co-host is Jennifer Milner, former professional ballet and Broadway dancer and founder of Bodies In:Motion.  Takeaways Dancers, especially those with hypermobility, are at a higher risk for developing eating disorders due to the pressure to achieve a certain body image and the overlap with other mental health issues. Eating disorders are often coping mechanisms that provide a sense of control or avoidance of difficult emotions and stressors. The dance world's emphasis on perfectionism and sacrifice can contribute to the development of eating disorders. It is important for dance studios and companies to have protocols in place for addressing eating disorders and to provide support and resources for dancers. If you suspect someone may be struggling with an eating disorder, reach out to a trusted adult or professional for guidance and support. Chapters00:00 Introduction and Welcome00:30 Introducing Josh Spell01:36 Prevalence of Eating Disorders in Dancers03:09 The Relationship Between Hypermobility and Eating Disorders05:08 Understanding Eating Disorders as Coping Mechanisms08:00 The Intersection of Eating Disorders and Other Mental Health Issues10:35 The Impact of Social Media and Diet Culture on Eating Disorders13:25 Self-Image and Body Standards in the Dance World16:19 The Influence of Social Media and Zoom on Body Image20:25 Balancing Sacrifice and Suffering in the Dance World23:00 The Role of Dance Studios and Companies in Supporting Dancers' Mental Health27:13 Steps for Directors and Teachers to Take When Suspecting an Eating Disorder32:47 Steps for Friends and Loved Ones to Take When Suspecting an Eating Disorder36:31 Steps to Take If You Suspect You Have an Eating Disorder42:18 Hypermobility Hack: Giving the Eating Disorder a Persona45:12 Where to Find Josh Spell OnlineThis important conversation with Josh Spell about disordered eating in dance will leave you feeling more knowledgeable and better equipped to handle difficult situations.  Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority! 🧬🔬🦓Resources mentioned during the episode:Links for show notes:https://flexiblemindcounseling.org/https://www.instagram.com/spellbound20/https://www.linkedin.com/in/josh-spell-msw-licsw-07b17816/https://www.jennifer-milner.com/National Suicide Prevention Lifeline: 1.800.273.8255Crisis Text Line: Text HOME to 741741; Free crisis support, anywhere in USEating Disorder Helpline: Call or text 1.800.931.2237NEDA – National Eating Disorders Association: www.nationaleatingdisorders.orgNAMI – National Alliance on Mental Illness: www.nami.orgProject Heal – https://www.theprojectheal.org/Find an Accredited Registered Dietitian (RDN) – www.eatright.org/find-an-expertFind a Therapist: www.psychologytoday.com/us/therapists#Hypermobility #JointHypermobility #BalletLife #HypermobilityAware #DanceWellness #BodyPositiveBallet #HealthyDancer #BalletBodyLove #DancerTips #NutritionForDancers #EmpoweredDancer #NourishYourPassion #MindBodyBallet #BalancedDancerLife #hEDS #EhlersDanlos #HSD Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode, psychologist Dr. Amanda Cassil discusses the unfair EDS journey (Ehlers-Danlos Syndromes) and provides strategies for effectively communicating with healthcare providers.  Dr. Cassil provides valuable insights and tools for navigating the healthcare system and improving the quality of life for individuals with chronic illnesses. In this conversation, Dr. Amanda Cassil and Linda Bluestein, MD discuss the challenges faced by patients with hypermobility disorders (like Ehlers-Danlos Syndromes) and chronic illnesses.YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Takeaways Approach advocacy from a place of compassion and understanding Regulate your nervous system and slow down to make more intentional and strategic decisions Acknowledge and process grief as a natural part of living with chronic illness Consult with trusted individuals and healthcare providers for guidance and support. Collaboration between patients and healthcare providers can be challenging due to the merging of different knowledge and experiences. Patients can advocate for themselves by asking doctors how to prioritize and address multiple symptoms and issues. Dialectical behavioral therapy (DBT) is an effective tool for nervous system and emotional regulation. Patients should remember that their medical journey is often unfair, but there are healthcare providers working to make systemic changes. Chapters00:00 Introduction01:04 Motivation for Giving the Talk at the EDS Society Global Conference04:14 Advocacy and the Challenges of the Healthcare System07:16 Approaching Advocacy without Blame10:27 Grief and Acceptance in Chronic Illness13:34 Key Takeaways from the Talk18:04 The Role of the Prefrontal Cortex in Chronic Illness19:12 Neurodiversity and Advocacy20:12 Presenting Research to Doctors23:02 Dealing with Suboptimal Experiences with Clinicians26:09 Processing Traumatic Experiences29:16 The Role of Grief in Chronic Illness36:09 Coping with Traumatic Experiences40:36 Presenting Research to Doctors (Continued)46:27 Navigating the Challenges of Collaboration48:07 Addressing Multiple Symptoms and Issues53:42 Dialectical Behavioral Therapy (DBT) for Nervous System and Emotional Regulation59:41 Finding Your Way Through an Unfair JourneyThis important conversation with Dr. Amanda Cassil about the unfair EDS journey will leave you feeling better equipped to handle difficult medical encounters.  Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!Resources mentioned during the episode:https://www.STEMpsychology.comhttps://www.instagram.com/stempsychology/https://www.linkedin.com/in/drcassilhttps://drgabormate.com/book/the-myth-of-normal/https://www.resmaa.com/merchhttps://www.besselvanderkolk.com/#HealthJourney #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #MedicalGaslighting #BendyBuddy #HypermobilityMD  #BendyBodies #HealthAdvocacy #SupportPatients #PatientEmpowerment #HealthcareStruggles #WomenInStem #DisabledInStem  Learn more about your ad choices. Visit megaphone.fm/adchoices

In this Bendy Bodies with the Hypermobility MD podcast episode, making a MCAS documentary is discussed.  Distinguished participants in this collaborative effort include Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, alongside dedicated patient advocate Jill Brook.   YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Key Highlights:1. The initiative incorporates both a documentary and an online educational library strategically designed to elevate awareness surrounding MCAS, Dysautonomia, and Hypermobility Spectrum Disorders.2. Renowned healthcare professionals, namely Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, in conjunction with patient advocate Jill Brook, are pivotal contributors to this initiative.3. The documentary aspires to elucidate the myriad challenges confronted by individuals navigating the complexities inherent in the triad of syndromes, emphasizing the imperative of heightened awareness among healthcare providers to facilitate more efficacious treatment modalities.4. Dr. Afrin underscores the prevalence of MCAS and advocates for its consideration in the differential diagnosis for patients with complex medical presentations.5. The term "dystrophism" is introduced within the discourse, signifying aberrations in growth and development propelled by dysfunctional mast cells.6. Participants candidly share their experiences during the documentary's filming process, underscoring the inherent difficulty of condensing intricate information into concise soundbites.7. The timely recognition of MCAS is underscored as a critical determinant for effective treatment interventions and an enhanced quality of life.8. The team is dedicated to elucidating the nuances of MCAS, POTS, and EDS through the medium of a documentary, with the aim of providing comprehensive knowledge about these medical conditions.9. Emphasis is placed on the significance of joint hypermobility. Should it give rise to complications, it may serve as a potential indicator for dysautonomia or MCAS.10. Dysautonomia serves as an encompassing term, inclusive of conditions such as POTS and Inappropriate Sinus Tachycardia. 11. Identifying growing pains (quite literally!) associated with these conditions can be a challenging endeavor. The gradual development poses a considerable challenge for all involved.12. A fervent commitment is made towards establishing an educational repository, replete with in-depth explorations by experts, delving into the intricacies of these subjects.13. The team candidly discloses the necessity for financial support to conclude their documentary project. Their overarching objective is to disseminate awareness about MCAS, POTS, and EDS.14. The documentary, at its core, is designed to render this information easily accessible, ensuring that individuals – be they patients, families, or clinicians – can acquire a comprehensive understanding of coping with these conditions.Chapters00:00 Introduction00:37 Creating Awareness and Increasing Treatment Options03:09 The Birth of the Documentary Project05:20 Filming in New York07:19 Filming in St. Louis10:32 The Motivation to Work with Complex Patients15:49 The Journey of Recognizing MCAS17:34 The Impact of MCAS Treatment21:00 Personal Experiences and Incorporating MCAS Treatment22:42 The Need for an Educational Library25:29 The Challenge of Condensing Information26:21 Describing MCAS in Sound Bites31:10 The Importance of Raising Awareness34:42 Growth and Development Abnormalities in MCAS40:03 Main Points about Hypermobility Syndromes and Dysautonomia44:48 Partnership with LDN Research Trust51:47 Final Words and Call for Support54:26 Recognition and Treatment of Unrecognized Patients55:44 Importance of Learning and Trying56:13 Gratitude for Dedicated Doctors56:47 Closing Remarks and ResourcesConnect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!Products, organizations, and services mentioned in this episode:https://www.mcasfund.org/https://aimcenterpm.com/https://www.gidoctor.net/leonard-weinstock-mdhttps://www.ssmhealth.com/find-a-doctor/doctor-details/laurence-j-kinsella-mdhttps://www.hypermobilitymd.com/https://www.standinguptopots.org/#MCAS #film #documentary #HealthJourney #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #POTS #Dysautonomia #BendyBuddy #HypermobilityMD  #BendyBodies #UnexplainedHealthIssues #POTSsyndrome #MastCells #PainManagement  #PatientAdvocacy Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode, join thoracic surgeon and chest wall reconstruction expert Adam Hansen, MD, to learn about slipping rib surgery in EDS.  Well known for his innovative surgeries for slipping rib syndrome (SRS), Dr Hansen has treated close to 1000 SRS patients.  Many of his patients are challenged with Ehlers-Danlos Syndrome and other skeletal hypermobility disorders.  YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Takeaways Slipping rib syndrome and other chest wall disorders are often related to skeletal hypermobility. Evaluation and diagnosis of chest wall problems require a thorough physical exam and imaging, such as CT scans. Symptoms of chest wall compression syndromes include pain, breathing difficulties, and organ dysfunction. Emerging areas of discovery include posterior joint disorders and bridging cartilage separation. Self-help strategies, such as improving posture and specific exercises, can help manage chest wall problems and potentially avoid surgery. Maintaining good posture and performing exercises that strengthen the back can help alleviate slipping rib syndrome. Taping strategies and lifestyle changes, such as using lumbar pillows and sit-to-stand desks, can provide relief and improve posture. Avoid high velocity manipulation, as it can exacerbate slipping rib syndrome. Candidates for surgery should have a strong core, realistic expectations, and should reduce or eliminate the use of pain medications before the procedure. The Hansen 3.0 technique is the preferred surgical procedure for slipping rib syndrome, offering better outcomes compared to previous techniques. The surgery has a low rate of complications, with the most common being collapsed lungs, hematomas, and wound infections. There is no significant difference in outcomes between patients with hypermobility spectrum disorder and those with Ehlers-Danlos syndrome. The likelihood of recurrence or additional slipped ribs after repair is low when the surgery is performed correctly. Physicians should be aware of slipping rib syndrome and other chest wall problems and stay updated on the latest techniques and treatments. Dr. Adam Hansen teaches other surgeons how to address slipping ribs and complex chest wall reconstruction. He has built a network of surgeons around the world to provide local treatment options for patients. There is a correlation between cervical instability and slipping ribs, and both are part of the broader issue of hypermobility and skeletal disorders. Focusing on key areas for stability, such as the core, can have a significant impact on overall care and muscle strength. Chapters00:00 Introduction and Warm-up01:03 Background and Expertise of Dr. Adam Hansen03:14 Understanding Slipping Rib Syndrome and Other Chest Wall Disorders09:32 Relationship Between Chest Wall Disorders and Skeletal Hypermobility14:01 Evaluation and Diagnosis of Chest Wall Problems21:16 Symptoms and Impact of Chest Wall Compression Syndromes24:49 Emerging Areas of Discovery in Slipping Rib Syndrome28:47 Evaluation of Chest Wall Problems: Physical Exam and Imaging36:37 Abdominal Compression Syndromes and Chest Wall Disorders41:19 Self-Help Strategies and Avoiding Surgery43:48 Posture and Exercise45:09 Taping Strategies and Lifestyle Changes46:23 Avoiding High Velocity Manipulation48:08 Qualifications for Surgery51:18 Preparing for Surgery53:21 Surgical Procedures58:08 The Hansen 3.0 Technique01:01:18 Outcomes and Complications01:20:06 Hypermobility Spectrum Disorder and EDS01:21:09 Male-Female Differences01:22:11 Recurrence and Additional Slipped Ribs01:23:49 Physician Awareness and Education01:24:58 Teaching Other Surgeons01:26:05 Building a Network of Surgeons01:26:50 Correlation Between Cervical Instability and Slipping Ribs01:28:38 Hypermobility and Skeletal Disorders01:29:59 Key Areas for Stability01:30:17 Hypermobility Hacks01:31:00 Finding Dr. Adam Hansen Online01:33:33 Closing RemarksThis important conversation with Dr. Adam Hansen about surgery for slipping rib syndrome and other chest wall problems will leave you feeling more knowledgeable and with a better understanding of the key factors to consider when contemplating surgery for these painful conditions.  Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!Products, organizations, and services mentioned in this episode:http://www.youtube.com/@adamhansen6524Slipping Rib Syndrome Physical Examination   SD 480p:https://www.youtube.com/watch?v=Na69xXUZGhg Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode, YOUR guest is Jill Miller, author of the book 'Body by Breath: The Science and Practice of Physical and Emotional Resilience.'  Jill has 30 years of corrective movement expertise that forges links between the worlds of yoga, massage, athletics, and pain management. Her signature self-care fitness programs, Yoga Tune Up® and The Roll Model® are found at gyms, yoga studios, hospitals, athletic training facilities and corporations worldwide. Jill is the former anatomy columnist for Yoga Journal, has been featured in New York Times, Wall Street Journal, Shape, Women’s Health, O, the Today Show, and is a contributing expert on the Oprah Winfrey Network. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.TakeawaysJill Miller's book 'Body by Breath' is a comprehensive guide to physical and emotional resilience.Bendy bodies should care about fascia because it is the organizing tissue of the entire body and affects mobility and stability.Self-mobilization and self-myofascial release are important for bendy bodies to address tension and enhance proprioception.The five P's of the parasympathetic nervous system (perspective, place, position, pace of breath, and palpation) can help induce relaxation and enhance body awareness.The low back decompression exercise using therapy balls can provide relief and improve proprioception for bendy bodies. Improving core strength and breathing is essential for hypermobile bodies.Understanding zone one, zone two, and zone three breathing can help manage pain, movement, and emotional states.Self-fascial treatments, such as deep gut and rib massage, can improve breathing and alleviate hypertonicity.Extracorporeal shockwave therapy is a non-invasive treatment that can reduce inflammation and alleviate pain.Community support and engagement are crucial for managing hypermobility.High-intensity interval training can improve aerobic capacity and overall well-being for hypermobile individuals.  It is highly recommended to have individual guidance for this.Chapters00:00 Introduction and Background03:01 Inspiration for Writing the Book09:11 Organization of the Book13:30 Why Bendy Bodies Should Care About Fascia15:40 Starting with Limited Budget19:02 Helpful Exercises for Bendy Bodies23:27 Addressing Mixed Picture of Bendiness and Stiffness28:07 The Five P's of the Parasympathetic Nervous System36:14 Low Back Decompression Exercise46:07 Improving Core Strength and Breathing51:41 Understanding Zone One, Zone Two, and Zone Three Breathing57:29 Self-Fascial Treatments for Better Breathing01:00:10 Managing Hypermobility Symptoms01:03:35 Extracorporeal Shockwave Therapy for Acute Pain01:09:10 The Power of Community and High-Intensity Interval TrainingThis important conversation with Jill Miller about using the breath to reduce pain will leave you feeling more knowledgeable and with a better understanding of the contributing factors to suboptimal pain control.  Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!Products, organizations, and services mentioned in this episode:www.tuneupfitness.comhttps://thereadystate.com/https://thereadystate.com/product/becoming-a-supple-leopard-2nd-edition/https://fasciaguide.com/experts/carla-stecco/https://jen.health/https://www.tuneupfitness.com/shop/online-course/roll-into-hiithttps://patternpt.com/https://www.youtube.com/@TuneUpFitnesshttps://www.amazon.com/Yoga-Bendy-People-Optimizing-Hypermobility/dp/B0B2TSN3W3/ref Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode, YOUR guest is Colin Halverson, PhD.  He received his Ph.D. in linguistic and medical anthropology from the University of Chicago, where he studied communication issues in medical genetics, based on fieldwork at Mayo Clinic. At Chicago, he also completed a fellowship in clinical ethics, and then a postdoctoral fellowship in medical ethics at Vanderbilt. He is currently a professor at Indiana University School of Medicine, where his research focuses on ethical care for patients with rare disease, in particular Ehlers-Danlos Syndrome (EDS).YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Takeaways Patients with Ehlers-Danlos syndrome often face an antagonistic relationship with healthcare professionals, leading to mistrust and negative health outcomes. The diagnostic odyssey experienced by patients with EDS can be likened to a hero's journey, characterized by challenges, misdiagnoses, and a long path to diagnosis. The panoply of symptoms in EDS and the complexity of chronic pain make it difficult for patients to describe their experiences and receive appropriate care. Clinician-associated traumatization is a distinct construct that captures the negative experiences and trauma patients with EDS face in their interactions with healthcare professionals. Building a trustworthy team of clinicians and seeking support from the EDS community can help patients navigate the challenges of their condition and improve their healthcare experiences. Chapters00:00 Introduction00:29 Dr. Halverson's Background and Research Interest03:02 The Hero's Journey of Patients with Ehlers-Danlos Syndrome05:51 Challenges Faced by Patients with Ehlers-Danlos Syndrome07:02 Antagonistic Relationship with Healthcare Professionals08:29 Impact of Antagonistic Relationship on Patients09:47 Triggers for Transition into Unbearable Symptoms12:36 The Panoply of Symptoms in Ehlers-Danlos Syndrome13:44 Importance of Panoply of Symptoms in Diagnosis15:22 Challenges in Describing Multi-Systemic Symptoms16:26 Numeric Pain Scales and the Complexity of Chronic Pain19:40 Research on Hypermobile Ehlers-Danlos Syndrome20:39 Research on Other Forms of Ehlers-Danlos Syndrome23:56 Failure of Empathy in Patient-Provider Relationships27:24 Worse Health Outcomes and Trust Issues28:06 Impact of Failure of Empathy on Patients30:33 Dealing with Antagonistic Relationships31:45 The Isolation and Invisibility of Ehlers-Danlos Syndrome36:12 Clinician-Associated Traumatization and its Differences from Other Constructs39:21 Surprising Aspects of the Research42:01 Recommendations for Patients with Clinician-Associated Traumatization45:01 Future Directions of Research49:04 Closing RemarksThis important conversation with Dr. Halverson about clinician-associated trauma in patients with Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorder (HSD) will leave you feeling better prepared to advocate for the care you need.  Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!Products, organizations, articles, and services mentioned in this episode:https://bioethics.iu.edu/people/colin-halverson.htmlhttps://pubmed.ncbi.nlm.nih.gov/34524722/https://doi.org/10.1016/j.ssmqr.2023.100237Dr. Halverson can be reached at chalver@iu.edu.#InvisibleIllness #HealthJourney #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #BendyBuddy #HypermobilityMD #BendyBodies #EhlersDanlosResearch #MedicalGaslighting #PatientSupport #ResearchOpportunity #DiagnosticJourney Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode, YOUR guest is Lisa Ralston, a physical therapist with over 30 years of experience in orthopedics, joint hypermobility, foot pain, and sports medicine. Since 2009, she has traveled internationally treating Team USA Olympians and World level figure skaters. Lisa was the physical therapist for Team USA figure skating for the 2022 Winter Olympics in Beijing.  Lisa is the owner and founder of Ralston Physical Therapy and Wellness in Arvada, CO. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Takeaways Posture and alignment play a crucial role in foot pain in people with joint hypermobility. Orthotics can be an effective intervention for managing foot pain in hypermobile patients. Assessing and addressing foot pain early in children can prevent the development of other pain problems. Proper shoe selection and tying techniques are important for managing foot pain. Failed physical therapy may be due to a lack of addressing all systems and factors contributing to the condition. Orthotics can fail if they are not properly assessed and customized to the individual's foot flexibility and posture. Over-the-counter orthotics can be a more affordable option, but it is important to choose ones that provide proper support and alignment. Self-mobilization exercises, such as using a foam ball to mobilize the foot joints, can help improve foot mobility and relieve pain. Addressing foot stability and proprioception is crucial for maintaining proper foot alignment and preventing issues related to hypermobility. Hypermobility in ice skaters is a specific topic that may be worth exploring in a future episode. Foot problems are common and can cause significant discomfort and pain. Proper lacing techniques can help alleviate foot pain and discomfort. Lisa Ralston provides valuable insights and tips for managing foot problems. Chapters00:00 Introduction and Guest Introduction02:05 Causes of Foot Pain in People with Joint Hypermobility06:12 Approach to Hypermobility Patients08:18 Common Causes of Foot Pain10:10 Pain Begets Pain11:36 Approach to Hypermobile Patients14:59 Orthotics for Children17:02 Different Approach for Hypermobile Patients19:06 Assessment and Treatment of Foot and Ankle21:00 Shoe Selection and Tying Techniques23:19 Different Foot Types and Shoe Recommendations26:31 Importance of Firm Heel Counter in Shoes27:45 Tying Shoes Properly31:40 Recommended Shoe Brands34:53 Orthotics and Failed PT39:51 Addressing Failed PT47:51 Orthotics and Failed Orthotics53:48 Over-the-Counter Orthotics56:06 Self-Mobilization of Feet01:08:46 Hypermobility in Ice Skaters01:09:16 Hypermobility Hacks01:09:26 Foot Problems and Solutions01:10:21 Lacing Techniques for Foot Comfort01:10:54 Finding More Information OnlineThis important conversation about foot pain and orthotics in people with Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorder (HSD) and other hypermobility conditions will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the contributing factors to suboptimal foot function.  Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!Products, organizations, and services mentioned in this episode:https://lisaralstonpt.janeapp.com/https://www.bauerfeind.com/b2c/https://www.oofos.com/https://www.abeofootwear.com/https://www.humanlocomotion.com/https://www.brooksrunning.com/en_uhttps://www.hoka.com/en/us/https://www.aetrex.com/homehttps://yoursole.com/ushttps://www.vasylimedical.com/https://www.birkenstock.com/ushttps://www.nike.com/https://www.saucony.com/en/homehttps://naot.com/https://www.keenfootwear.com/https://www.merrell.com/US/en/homehttps://www.chacos.com/US/en/homehttps://www.mephisto.com/us/https://www.theballetblog.com/about-us/lisa-howell/https://nyulangone.org/locations/harkness-center-for-dance-injurieshttps://www.vasylimedical.com/products/easyfithttps://www.humanlocomotion.com/product/peel-and-stick-balances-sesamoid-balance/ Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode, YOUR guest is Dacre Knight, MD.  Dr. Knight established a specialty clinic for treating patients with hypermobility syndromes including hypermobile Ehlers-Danlos Syndrome (hEDS) and hypermobility syndrome disorder (HSD) at Mayo Clinic Jacksonville, Florida in 2019.  YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Explored in this episode:·  What specialty evaluations are most important for patients with hypermobility syndromes·  What tests he feels are most helpful for patients with Ehlers-Danlos Syndromes (EDS) and HSD·  How they determine when to perform genetic testing and the findings in this group of patients·  How his approach has evolved since the clinic’s inception in 2019·  The research that he has conducted and relevant findings·  The role of autoimmunity in EDS and HSD·  Findings in patients with orthostatic intolerance vs Postural Orthostatic Tachycardia Syndrome (POTS)·  The role of the immune system in symptomatic joint hypermobility·  The relationship with fibromyalgia·  What percentage of patients are diagnosed with hEDS vs HSD·  What he says to people who assume that HSD is a less serious conditionThis important conversation about Dr. Knight’s approach to the evaluation and treatment of hEDS and HSD will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the evaluation process.  Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!Products, organizations, and services mentioned in this episode:Ehlers-Danlos Syndrome Newsfeed | Mayo Clinic ConnectEhlers-Danlos Syndrome Clinic in Florida - Overview - Mayo Clinichttps://www.mayoclinic.org/biographies/knight-dacre-m-d/bio-20477206https://x.com/knidac?s=21https://www.frontiersin.org/articles/10.3389/fmed.2023.1096180/fullhttps://link.springer.com/content/pdf/10.1007/s42399-022-01218-w.pdfhttps://pubmed.ncbi.nlm.nih.gov/35687402/https://www.ehlers-danlos.com/https://www.ehlers-danlos.com/healthcare-professionals-directory/#BendyBuddy #HypermobilityMD #POTSawareness #HolisticHealth #MayoClinicJax#SpecialtyClinic #HealthInnovation #WholeBodyTreatment #MedicalCollaboration#InvisibleIllness #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility Learn more about your ad choices. Visit megaphone.fm/adchoices