Mad in America: Rethinking Mental Health

The Mad in America podcast is sponsored this week by Drs Rani and Suraj Holistic Psychiatry and Mental Health Coaching. Are you Ready to make a lasting change in your life? Then join Dr Rani Bora's 12-month group coaching programme named "Beyond Diagnosis". Visit their website drsranisuraj.com today for more information and to join this unique programme. *** Last fall, the New Haven Register reported that a group of Yale University students and alumni filed a federal lawsuit against the university challenging its policies and practices around students with mental health disabilities. But according to our guest, a lack of access to appropriate support, as well as discrimination against students struggling with their mental health, are all too common on American campuses. Stefanie Lyn Kaufman-Mthimkhulu is the founder and director of the non-profit Project LETS, which stands for Let’s Erase the Stigma. Project LETS is a national grassroots organization and movement focused on creating innovative, peer-led alternatives to our current mental health system. Their work includes peer support and communicative care, political advocacy, organizing, and mutual aid. Project LETS's mission looks beyond academia, though; led by and for people with lived experience of mental illness/madness, disability, trauma, and neurodivergence, it “seeks to build a world without systems of oppression where non-carceral responses to crises are the norm.” The organization is now active on about 30 college and high school campuses across the country. Kaufman-Mthimkhulu is a 2017 graduate of Brown University with a degree in Medical Anthropology and Contemplative Studies, and was a 2018 Fullbright Scholar. They describe themselves as a "white, queer, non-binary, disabled, neurodivergent care worker who shows up for their communities as a Disability Justice and Mad Liberation educator and organizer, parent, doula, peer supporter, writer, and conflict intervention facilitator." *** Thank you for being with us to listen to the podcast and read our articles this year. MIA is funded entirely by reader donations. If you value MIA, please help us continue to survive and grow. To find the Mad in America podcast on your preferred podcast player, click here

In December 2019, we wrote about the Hurdalsjøen Recovery Center, which is a private psychiatric hospital located about forty minutes north of Oslo, on the banks of stunning Lake Hurdal. The hospital was set up by its director, Ole Andreas Underland, to provide “medication-free” care for those who wanted such treatment or who wanted to taper from their psychiatric drugs. In this interview, Robert Whitaker talks again with Ole Andreas to understand both the success of this pioneering approach and why this success might threaten its future. *** Thank you for being with us to listen to the podcast and read our articles this year. MIA is funded entirely by reader donations. If you value MIA, please help us continue to survive and grow. To find the Mad in America podcast on your preferred podcast player, click here

Today we are continuing with our look behind the scenes of Mad in America for our 200th podcast. Mad in America got started in January 2012 and so to celebrate a decade of critical comment and appraisal we thought it would be interesting to reflect on Mad in America’s mission and work by speaking to the people behind the scenes, who keep it running day-to-day. Before we move on to our interviews, I want to pay tribute to the people at MIA who couldn’t join us for these interviews for one reason or another. Susannah Senerchia is our Assistant Editor and amongst other things, manages our Around the Web section. She is always finding interesting articles from the corners of the internet that help to tell of a shift in thinking about mental health. Also, of course, Mad in America relies heavily on the science news team as we discussed in part one of this podcast and for overview, we have our Board consisting of Robert Whitaker, Kermit Cole, Louisa Putnam, Olga Runciman and Claudia Esteve. So, on to our interviews and we hear from coordinator of our continuing education webinars, Carina Ruggiero, science writer and blogs editor, Peter Simons, personal stories editor, Emmeline Mead, community moderator, Steve McCrea, and family resources editor, Miranda Spencer. Thank you for being with us to listen to the podcast and read our articles this year. MIA is funded entirely by reader donations. If you value MIA, please help us continue to survive and grow.

This week is a special one for us at Mad in America, as it’s the 200th episode of our podcast. Our first interview was with attorney and author of Zyprexa Papers, Jim Gottstein, back in July 2017. For this and the next podcast, we’ll be talking to the people that make Mad in America what it is, the people behind the scenes, who keep it running day-to-day. Later in this podcast, we will hear from staff reporter Amy Biancolli, science news editor Justin Karter and arts editor Karin Jervert, but to kick us off today, we hear from Mad in America founder, Robert Whitaker. Bob worked as a newspaper reporter for a number of years, covering medicine and science. He is the author of five books, three of which investigate the history of psychiatry and the merits of its treatments. Those books are Mad in America,published in 2002; Anatomy of an Epidemic, from 2010, and he was co-author along with Lisa Cosgrove of Psychiatry Under the Influence, published in 2015. He was also a director of publications at Harvard Medical School for a time during the 1990s. Bob joined me to talk about how Mad in America got started and how it strives to achieve its aim of rethinking psychiatry. *** MIA is funded entirely by reader donations. If you value MIA, please help us continue to survive and grow. Thank you!  

Madness: Fighting for Justice in Mental Health is an upcoming conference created by the Disruption Network Lab. The Lab examines the intersection of politics, technology and society, exposing the misconduct and wrongdoing of the powerful. This year, the conference will investigate systems of mental health care focusing on the prevailing discourses and practices, biases, and inequalities. It will explore the questions: What does it mean to have a just mental health care system and who has access to it? Who decides who is labelled as mad? The conference is being held in Berlin, Germany, as well as streamed online free on November 25th through the 27th. You can view the conference live at disruptionlab.org/madness. In this podcast, Mad in America’s Arts Editor, Karin Jervert, interviews the curator of the conference, Elena Veljanovska, and three artists—Dolly Sen, Anika Krbetschek, and Marcello Lussana—about art and transformation, human rights, and justice in mental health. Dolly Sen is an internationally renowned writer, filmmaker, artist, and activist. Anika Krbetschekis a multidisciplinary artist and curator. And Marcello Lussana is a research associate and coordinator of the project Social Interaction Through Sound Feedback, Sentire. These artists will be interviewed at the conference on Saturday the 26th at 8 pm CET/2 pm EST on a panel moderated by Lily Martin titled “Art and Survivor Empowerment.”

On the Mad in America podcast this wweek we are joined by renowned psychopharmacologist Dr David Healy. David is a psychiatrist, scientist and author. Before becoming a professor of Psychiatry in Wales, and more recently in the Department of Family Medicine at McMaster University in Canada, he studied medicine in Dublin and at Cambridge University. He is a former Secretary of the British Association for Psychopharmacology, and has authored more than 220 peer-reviewed articles, 300 other pieces, and 25 books, including The Antidepressant Era, The Creation of Psychopharmacology and Pharmageddon. He has been involved as an expert witness in homicide and suicide trials involving psychotropic drugs, and in bringing problems with these drugs to the attention of American and European regulators, as well raising awareness of how pharmaceutical companies sell drugs by marketing diseases and co-opting academic opinion-leaders, ghost-writing their articles. David is a founder and CEO of Data Based Medicine Limited, which operates through its website RxISK.org, dedicated to making medicines safer through online direct patient reporting of drug side effects. In this interview we discuss the recently held World Tapering Day, a possible relationship between antidepressant treatment and sensory neuropathy and the difficulties that can be encountered when trying to deprescribe.

Morgan Shields is one of the few health policy researchers who focuses on quality of care and issues of coercion within inpatient psychiatry. Her research exposes how current healthcare settings are influenced by power imbalances, profit structures, and organizational priorities that are fundamentally misaligned with the human needs of individual patients. Dr. Shields completed her Ph.D. in Social Policy at Brandeis University and is currently an Assistant Professor at the Brown School of Social Work at Washington University in St. Louis, where she also directs her own research group. She has published over 25 peer-reviewed articles in outlets such as Health Affairs, Psychiatric Services, and the JAMA Network. She has also completed several policy reports for entities such as the U.S. Health and Human Services Office, and has served as a legal expert in cases related to psychiatric patient discrimination. In doing so, her research has effected change at the state and federal levels, prompting internal investigations and structural reforms within agencies such as the Veterans Health Administration and the Massachusetts Department of Mental Health. In this interview, Dr. Shields discusses her current work, which aims to identify strategies for implementing patient-centered and equitable treatment within existing mental health care structures—toward a wholesale re-imagining of inpatient psychiatry.

This week we are sharing a special interview that’s being done as part of World Tapering Day. World Tapering Day is being held on the 4th, 5th and 6th of November 2022 and it aims to raise global awareness of the need to safely taper psychotropic drugs. It has been organized by people with personal experience of the severe difficulties that can arise when stopping antidepressants, antipsychotics or benzodiazepines. If you would like to find out more or participate, you can visit the website WorldTaperingDay.org where you can sign up for a range of free-to-view webinars. Our guest today is Anders Sørenson. Anders is a Danish clinical psychologist with a special interest in psychiatric drug withdrawal. He has undertaken research which assesses the state of guidance on psychiatric drug withdrawal. He has also paid close attention to tapering methods with the aim of identifying approaches which might make withdrawal more tolerable for people.  In addition to his research work, Anders utilizes psychotherapy in his private practice when helping people to come off the drugs and we’ll get to talk about some of that in this interview.

Justin Karter is a staff psychologist at Boston College University Counseling Services. He is a recent graduate of the doctoral program in Counseling Psychology at the University of Massachusetts Boston, where he completed his dissertation research on the experiences of psychosocial disability activists in the Global South. He has served as the editor of the research news section of the Mad in America website since 2015. In addition, he has held executive board positions with the Society for Humanistic Psychology and the Society for Theoretical and Philosophical Psychology. Despite being a recent graduate and early career psychologist, he has published over 25 papers and textbook chapters on topics in critical psychology, critical psychiatry, and philosophy of psychology. While he has often been the interviewer for our MIA podcasts, today, we get to turn the mic around and ask him some questions. In doing so, we discuss his journey into the field and what he has learned through his work with MIA, research in critical psychiatry and psychology, and his practice as a therapist.

This week on the Mad in America podcast, we are joined by activist and artist Jim Flannery. Born and raised in suburban Weathersfield, Connecticut, Jim was committed at four mental hospitals across the United States. There he received the best care available in the modern world… torture, which included seclusion, restraints, forced drugging, coercion, and a psychiatric diagnosis. Later, he turned to the arts to speak out publicly about his experiences with the mental health system through performing stand-up comedy under the pseudonym Flim Jannery and now through music with his new album, "Sorry, It's Not Funny," which will be released on Friday, October 14. In 2020, Jim began hearing voices, which opened his eyes to what he terms a genocide against neurodiverse people. He shifted his creative efforts towards hip-hop, believing the genre was the best medium to communicate his perspective. You can hear the new album on the website jim-flannery.com. It’s also on Spotify, Apple Music, YouTube, Pandora, SoundCloud, and Tidal.