New Books in Disability Studies

People with disabilities are underrepresented in STEM fields, and all too often, they face isolation and ableism in academia. Uncharted: How Scientists Navigate Their Own Health, Research, and Experiences of Bias (Columbia UP, 2023) is a collection of powerful first-person stories by current and former scientists with disabilities or chronic conditions who have faced changes in their careers, including both successes and challenges, because of their health. It gives voice to common experiences that are frequently overlooked or left unspoken. These deeply personal accounts describe not only health challenges but also the joys, sorrows, humor, and wonder of science and scientists.With a breadth of perspectives on being disabled or chronically ill, these stories highlight the intersectionality of minoritized identities with the disability community. Uncharted features essays by contributors who are d/Deaf, blind, neurodivergent, wheelchair users, have experienced traumatic brain injuries, have blood sugar disorders, have rare medical diagnoses, or have received psychiatric diagnoses, among many others. In many cases, the scientific field is not fully accessible to them, and they frankly describe struggling as well as thriving alongside their conditions.Skylar Bayer is a marine ecologist and science communicator. Currently a marine habitat resource specialist in the NOAA Fisheries Alaska Regional Office, she received her Ph.D. from the University of Maine’s School of Marine Sciences for research on the sex lives of scallops and is a producer for the Story Collider.Gabi Serrato Marks is a geochemist turned writer. She received her PhD in the MIT-WHOI Joint Program in Oceanography and is now a partner at the scientist-focused PR firm Stellate Communications. Her work has been published in Scientific American and Audubon and on the PBS Eons YouTube Channel Learn more about your ad choices. Visit megaphone.fm/adchoices

For generations, Pauline scholars have responded in different ways to the Apostle’s “thorn in the flesh” (2 Cor. 12:7), our clearest indication that Paul was disabled—some with clinical diagnoses along biomedical lines, more with reticence and agnosticism as to the specifics of Paul’s disability, and others with doubts that Paul could have accomplished his apostolic work had he been physically impaired. On this episode, Isaac T. Soon joined the New Books Network to discuss his paradigm-pushing study A Disabled Apostle: Impairment and Disability in the Letters of Paul (Oxford UP, 2023), a revision of his recent Durham Ph.D. dissertation with the same title, which employs the insights of disability studies and “biographical criticism” not simply to exegete Paul’s enigmatic “thorn in the flesh” but to reflect more broadly on the Apostle’s rhetoric of disability and impairment in its ancient context. Simultaneously, Soon contends that by an awareness of embodied language in Paul’s letters and concepts of bodily normativity contemporaneous to him, we can know three of Paul’s disabilities: (1) inhabitation by a demonic/malevolent force, (2) penile circumcision, and (3) short stature. Meticulously researched, methodologically grounded, and robustly argued, this study offers thought-provoking resources for adherents of Paul, students of the ancient world, and Neutestamentlers alike to consider the impact of Paul’s physical body on the message that he was compelled to share among the first-century Gentile world.Isaac T. Soon (Ph.D., Durham University, 2021) is Assistant Professor of Religious Studies at Crandall University in Moncton, New Brunswick, Canada. Dr. Soon’s research focuses on the intersection of New Testament and early Christian texts with disability studies, including a current project on conceptions of bodily normativity and the portrayal of early Christian figures in ancient literature. Previous work of Isaac’s has been published in forums such as the Journal of Biblical Literature, New Testament Studies, Novum Testamentum, Vigiliae Christianae, the Journal for the Study of Judaism, Religions, Early Christianity, the Journal for the Study of the Pseudepigrapha, and the Journal for the Jesus Movement in its Jewish Setting.Rob Heaton (Ph.D., University of Denver, 2019) hosts Biblical Studies conversations for New Books in Religion and teaches New Testament, Christian origins, and early Christianity at Anderson University in Indiana. He recently authored The Shepherd of Hermas as Scriptura Non Grata: From Popularity in Early Christianity to Exclusion from the New Testament Canon (Lexington Books, 2023). For more about Rob and his work, or to offer feedback related to this episode, please visit his website at https://www.robheaton.com. Learn more about your ad choices. Visit megaphone.fm/adchoices

A transformative spiritual companion and deep dive into disability politics that reimagines disability in the Bible and contemporary culture."What's wrong with you?"Scholar, activist, and rabbi Julia Watts Belser is all too familiar with this question. What's wrong isn't her wheelchair, though--it's exclusion, objectification, pity, and disdain.Our attitudes about disability have such deep cultural roots that we almost forget their sources. But open the Bible and disability is everywhere. Moses believes his stutter renders him unable to answer God's call. Jacob's encounter with an angel leaves him changed not just spiritually but physically: he gains a limp. For centuries, these stories have been told and retold in ways that treat disability as a metaphor for spiritual incapacity or as a challenge to be overcome.Through fresh and unexpected readings of the Bible, Loving Our Own Bones: Disability Wisdom and the Spiritual Subversiveness of Knowing Ourselves Whole (Beacon Press, 2023) instead paints a luminous portrait of what it means to be disabled and one of God's beloved. Belser delves deep into sacred literature, braiding the insights of disabled, feminist, Black, and queer thinkers with her own experiences as a queer disabled Jewish feminist. She talks back to biblical commentators who traffic in disability stigma and shame. What unfolds is a profound gift of disability wisdom, a radical act of spiritual imagination that can guide us all toward a powerful reckoning with each other and with our bodies.Loving Our Own Bones invites readers to claim the power and promise of spiritual dissent, and to nourish their own souls through the revolutionary art of radical self-love.Ilana Maymind is a lecturer at the Religious Studies Department at Chapman University. Learn more about your ad choices. Visit megaphone.fm/adchoices

In rural northern Idaho in the winter of 2013-2014, Syringa Mobile Home Park’s water system was contaminated by sewage, resulting in residents’ water being shut off for 93 days. By summer 2018 Syringa had closed, forcing residents to relocate or face homelessness. In Trailer Park America: Reimagining Working-Class Communities (Rutgers UP, 2023), Dr. Leontina Hormel chronicles how residents dealt with regulatory agencies, frequent boil order notices, threats of closure, and class-based social stigma over this period. Despite all this, what was seen as a dysfunctional, ‘disorderly’ community by outsiders was instead a refuge where veterans, women heads of households, and people with disabilities or substance use disorders were supported and understood. The embattled Syringa community also organized to defend the rights and dignity of residents and served as a site for negotiating with local government, culminating in a class-action lawsuit that reached the federal level. The experiences Syringa residents faced in this conservative, predominately white region of the United States are emblematic of the growing national and global crisis in affordable housing and home ownership, with declining work conditions and incomes for the working-class.Michael O. Johnston, Ph.D. is a Assistant Professor of Sociology at William Penn University. He is the author of The Social Construction of a Cultural Spectacle: Floatzilla (Lexington Books, 2023) and Community Media Representations of Place and Identity at Tug Fest: Reconstructing the Mississippi River (Lexington Books, 2022). His general area of study is about the construction of identity and place. He is currently conducting research for his next project that looks at nightlife and the emotional labor that is performed by bouncers at bars and nightclubs. To learn more about Michael O. Johnston you can go to his website, Google Scholar, Twitter @ProfessorJohnst, or by email at johnstonmo@wmpenn.edu. Learn more about your ad choices. Visit megaphone.fm/adchoices

In the fourth of five special podcasts about from the recent SSEAC field schools to Southeast Asia, we will be hearing from students and staff from the field school to Timor Leste, which looked at disability and work. This field school was offered to students from health sciences, psychology, and social work. Leader Natali Pearson is joined by co-leader, Kim Bulkeley, and two University of Sydney students – Rosie and Alana.The students consider many of the important aspects of their experience including: what it’s like to meet a head of state, the value of learning transdisciplinary research methods, managing cultural differences, and gaining insights into their own educational experience and culture by moving outside their usual environment. Learn more about your ad choices. Visit megaphone.fm/adchoices

In her book Hell Hath No Fury: Gender, Disability, and the Invention of Damned Bodies in Early Christian Literature (Yale University Press, 2021), Meghan Henning illuminates how the bodies that populate hell in early Christian literature are punished after death in spaces that mirror real carceral spaces, effectually criminalizing those bodies on Earth. Contextualizing the apocalypses alongside ancient medical texts, inscriptions, philosophy, and patristic writings, this book demonstrates the ways that Christian depictions of hell intensified and preserved ancient notions of gender and bodily normativity that continue to inform Christian identity.Meghan R. Henning is associate professor of Christian origins at the University of Dayton.Schneur Zalman Newfield is an Associate Professor of Sociology and Jewish Studies at Hunter College, City University of New York, and the author of Degrees of Separation: Identity Formation While Leaving Ultra-Orthodox Judaism (Temple University Press, 2020). Visit him online at ZalmanNewfield.com. Learn more about your ad choices. Visit megaphone.fm/adchoices

The debate about whether mental health law should be abolished or reformed is one that is highly charged and to which there are no easy solutions. In Mental Health Law: Abolish Or Reform? (Oxford UP, 2021), Dr Kay Wilson does not shy away from these controversial debates. Examining the work that dignity can do, she makes the case for an holistic interpretation of the Convention on the Rights of Persons with Disabilities. In thinking about mental health reform, she provides a core framework which may guide support and intervention in a way that compels respect for the dignity of the person. This book makes an important contribution to the literature. Its nuanced approach and fearlessness in delving into the hard issues should be required reading for policy makers, lawyers and mental health practitioners.  Dr Kay Wilson is a postdoctoral fellow at the convenor of The Disability Law Network at Melbourne Law School, University of Melbourne. She is also a co-editor of The Future of Mental Health, Disability and Criminal Law, (Routledge, 2023). Jane Richards is a Lecturer in Law at York Law School, UK. Learn more about your ad choices. Visit megaphone.fm/adchoices

An autistic mom of three autistic kids, Dr. Jen Malia is the author of the children’s chapter book series The Infinity Rainbow Club and the picture book Too Sticky! Sensory Issues with Autism. Jen is Professor of English and Creative Writing Coordinator at Norfolk State University. She has a Ph.D. in English from the University of Southern California. We talk about her books, and her advocacy to discuss neurodivergence in children's literature.Mel Rosenberg is a professor emeritus of microbiology (Tel Aviv University, emeritus) who fell in love with children's books as a small child and now writes his own. He is co-founder of Ourboox, a web platform with some 240,000 ebooks that allows anyone to create and share flipbooks comprising text, pictures and videos. Learn more about your ad choices. Visit megaphone.fm/adchoices

All families have secrets but the facts requiring secrecy change with time. Nowadays A lesbian partnership, a “bastard” son, an aunt who is a prostitute, or a criminal grandfather might be of little or no consequence but could have unravelled a family at an earlier moment in history. In Keeping Family Secrets: Shame and Silence in Memoirs from the 1950s (NYU Press, 2023), Dr. Margaret K. Nelson is interested in how families keep secrets from each other and from outsiders when to do otherwise would risk eliciting not only embarrassment or discomfort, but profound shame and, in some cases, danger. Drawing on over 150 memoirs describing childhoods in the period between the aftermath of World War II and the 1960s, Dr. Nelson highlights the importance of history in creating family secrets and demonstrates the use of personal stories to understand how people make sense of themselves and their social worlds.Keeping Family Secrets uncovers hidden stories of same-sex attraction among boys, unwed pregnancies among teenage girls, the institutionalisation of children with mental and physical disabilities, participation in left-wing political activities, adoption, and Jewish ancestry. The members of ordinary families kept these issues secret to hide the disconnect between the reality of their own family and the prevailing ideals of what a family should be. Personal accounts reveal the costs associated with keeping family secrets, as family members lie, hurl epithets, inflict abuse, and even deny family membership to protect themselves from the shame and danger of public knowledge. Keeping Family Secrets sheds light not only on decades-old secrets but pushes us to confront what secrets our families keep today.This interview was conducted by Dr. Miranda Melcher whose doctoral work focused on post-conflict military integration, understanding treaty negotiation and implementation in civil war contexts, with qualitative analysis of the Angolan and Mozambican civil wars. Learn more about your ad choices. Visit megaphone.fm/adchoices

Note: This episode contains a discussion of suicide. A list of resources is available below. In Undoing Suicidism: A Trans, Queer, Crip Approach to Rethinking (Assisted) Suicide (Temple UP, 2023), Alexandre Baril argues that suicidal people are oppressed by what he calls structural suicidism, a hidden oppression that, until now, has been unnamed and under-theorized. Each year, suicidism and its preventionist script and strategies reproduce violence and cause additional harm and death among suicidal people through forms of criminalization, incarceration, discrimination, stigmatization, and pathologization. This is particularly true for marginalized groups experiencing multiple oppressions, including queer, trans, disabled, or Mad people.Undoing Suicidism questions the belief that the best way to help suicidal people is through the logic of prevention. Alexandre Baril presents the thought-provoking argument that supporting assisted suicide for suicidal people could better prevent unnecessary deaths. Offering a new queercrip model of (assisted) suicide, he invites us to imagine what could happen if we started thinking about (assisted) suicide from an anti-suicidist and intersectional framework. Baril provides a radical reconceptualization of (assisted) suicide and invaluable reflections for academics, activists, practitioners, and policymakers.An open access edition of Undoing Suicidism, made available by the Faculty of Social Sciences at the University of Ottawa, is available here.Alexandre Baril (abaril@uOttawa.ca) is Associate Professor at the University of Ottawa. His work is situated at the crossroads of gender, queer, trans, disability/crip/Mad studies, critical gerontology and critical suicidology. His commitment to equity has earned him awards for his involvement in queer, trans and disabled communities, including the Canadian Disability Studies Association Tanis Doe Francophone Award, and the Equity, Diversity and Inclusion President’s Award at the University of Ottawa. A prolific author who won the Young Researcher Award from the Faculty of Social Sciences at the University of Ottawa (2023), he has given over 200 presentations at the international level and has over 80 publications.Resources:SAFE HOTLINES and ONLINE SUPPORT GROUPS: Trans LifeLine (trans/non-binary): 1-877-330-6366 (Canada) and 1-877-565-8860 (USA) Autisme Soutien: Online support for autistic people (French Canada) BlackLine (BIPOC): 1-800-604-5841 (USA) REGULAR HOTLINES (might trace your call and contact emergency services): Talk Suicide Canada: 1-833-456-4566 Suicide.ca (Québec): 1-866-APPELLE The Hope for Wellness Helpline (Indigenous people in Canada): 1-855-242-3310 The Samaritains (USA): 1-212-673-3000 A full transcript of the interview is available for accessibility.Clayton Jarrard is a Research Project Coordinator at the University of Kansas Center for Research, contributing to initiatives at the nexus of research, policy implementation, and community efforts. His scholarly engagement spans the subject areas of Cultural Anthropology, Queer Studies, Disability Studies, Mad Studies, and Religious Studies. Clayton is also a host for the Un/Livable Cultures podcast. Learn more about your ad choices. Visit megaphone.fm/adchoices