New Books in Disability Studies

Outsiders: Why Difference is the Future of Civil Rights(Oxford University Press, 2019) by Zachary Kramer (Oxford University Press, 2019) sets forth an imaginative critique of the way that civil rights law currently fulfills its mission. Using stories that lucidly illustrate the gap between the aspiration of civil rights law and the lived reality, Professor Kramer proposes a new approach. Drawing on existing protections for disability and for religious practice, Professor Kramer outlines the way that a right to personality, combined with an accommodation-focused inquiry, could update and refresh our approach to civil rights.Zachary Kramer is Associate Dean of Faculty, Professor of Law, and Willard H. Pedrick Distinguished Research Scholar at the Sandra Day O'Connor College of Law at Arizona State University.Künga Tenje is an independent librarian in Virginia. Learn more about your ad choices. Visit megaphone.fm/adchoices

From the earliest days of medical research into autism, both psychologists and the general public have characterised those on the autism spectrum as literal-minded, unimaginative and lacking in empathy. While in recent years a fresh emphasis on neurodiversity has served to sweep aside this kind of reductive thinking, many people still view autistic readers as limited in their capacity to engage with literary texts. In his new book See It Feelingly: Classic Novels, Autistic Readers, and the Schooling of a No-Good English Professor (Duke University Press, 2018), educator and author Ralph James Savarese challenges the notion that autistic readers are unable to immerse themselves in figurative language or get lost in imaginative worlds. Instead, Savarese, himself the father of a young autistic man, explores the many diverse and illuminating ways in which neurodivergent readers can engage with literature. From a young reader who identifies with the cetacean “antagonist” of Moby Dick to a woman who provides stunning new insights into Philip K. Dick's Do Androids Dream of Electric Sheep?, See It Feelingly foregrounds the unique perspectives of autistic readers and highlights their inventive approaches to literary analysis. In this podcast, Professor Savarese speaks to Miranda Corcoran about the impetus for this project and his experience working with neurodivergent readers.Miranda Corcoran is a lecturer in twenty-first-century literature in University College Cork. Her research focuses on Cold-War fiction, science fiction, horror and the gothic. She is currently writing a monograph on witchcraft and adolescence in popular culture. She is a regular contributor to Diabolique and blogs about popular culture here. You can follow her on Twitter @middleagedwitch Learn more about your ad choices. Visit megaphone.fm/adchoices

Music lovers and researchers alike have long been fascinated by the story of Ludwig van Beethoven who became profoundly deaf as an adult and could not hear some of his most famous compositions including the Ninth Symphony. Many people have written about Beethoven’s deafness and speculated how he might have been able to compose despite his disability. Robin Wallace, however, is the first musicologist to write about Beethoven’s life and music who has had an intimate experience with deafness. Hearing Beethoven: A Story of Musical Loss and Discovery published by University of Chicago Press in 2018 pairs a new consideration of the effects of Beethoven’s deafness on his life and music with a loving memoir of the last years of Wallace’s first marriage after his wife, Barbara, suddenly lost her hearing. Written for a general audience as well as musicologists, in Hearing Beethoven, Wallace applies what he learned from Barbara’s experiences to Beethoven’s life. Wallace focuses on three main areas: Beethoven’s social life, the technology he used to help him hear speaking voices and music, and his compositional method and music. While providing new insights into Beethoven’s biography and compositions, Wallace also undermines some of the most enduring myths about Beethoven. He reminds us that neither Beethoven nor his wife Barbara overcame the challenges presented by their deafness, instead they strove to find “wholeness by learning to live within them.”Robin Wallace is a Professor of Musicology in the School of Music at Baylor University. He has published widely on the critical reception of Beethoven’s music including his first book, Beethoven’s Critics: Aesthetic Dilemmas and Resolutions During the Composer’s Lifetime (University of Cambridge Press, 1986). In addition to his scholarly publications, Wallace is the author of an introductory music textbook from Oxford University Press titled Take Note: An Introduction to Music through Active Listening.Kristen M. Turner, Ph.D. is a lecturer at North Carolina State University in the music department. Her work centers on American musical culture at the turn of the twentieth century and has been published in several journals and essay collections. Learn more about your ad choices. Visit megaphone.fm/adchoices

In her new book, Unlearning Eugenics: Sexuality, Reproduction, and Disability in Post-Nazi Europe (University of Wisconsin Press, 2018), Dagmar Herzog examines the relationship between reproductive rights and disability rights in contemporary European history. In a study that appeared in the George L. Mosse Series in Modern European Cultural and Intellectual History, Herzog uncovers much that is unexpected. She analyzes Protestant and Catholic theologians that were pro-choice in the 1960s and 1970s; the ways in which some advocates of liberalized abortion access displayed hostility to the disabled; the current backlash against women’s reproductive rights in Europe fueled in part by activists presenting themselves as anti-eugenics and pro-disability; and the impressive advances in disability rights inspired by submerged, contrapuntal strands within psychoanalysis and Christianity alike. An outstanding contribution to the histories of religion, sexuality, and disability rights, this book is essential reading for anyone interested in post-1945 Europe.Michael E. O’Sullivan is Associate Professor of History at Marist College where he teaches courses about Modern Europe. He published Disruptive Power: Catholic Women, Miracles, and Politics in Modern Germany, 1918-1965 with University of Toronto Press in 2018. Learn more about your ad choices. Visit megaphone.fm/adchoices

In this engaging discussion, Shelley Tremain, a feminist philosopher specializing in disability, dives deep into the intersection of Foucault's theories and feminist philosophy. She critiques the marginalization of disability in academic discourse and highlights the need for diverse perspectives. Tremain introduces the 'apparatus of disability,' challenging traditional views and emphasizing societal constructs over individual conditions. She also explores the power dynamics within bioethics and advocates for a broader, more inclusive understanding of disability, intertwined with various identity factors.

Ever since the first clinical account of autism was published by Dr. Leo Kanner in 1943, Western culture has tended to mythologise the disorder as impenetrable, non-verbal and characterised by silence. As such, in both medical literature and popular culture, autistic individuals are depicted as incomprehensible and Other, problems to be rectified or puzzles to be solved. In contrast to this view of autism as an inscrutable enigma, Autistic Disturbances: Theorizing Autism Poetics from the DSM to Robinson Crusoe (University of Michigan Press, 2018) by Julia Miele Rodas explores the expressive, creative potential of the autist by opening up a host of literary texts to the “possibilities of autism.” Autistic Disturbances is therefore a unique contribution to the growing field of disability studies as it does not simply explore autism from the standard clinical or biographical perspective. Instead, this insightful new study sets out to engage with autistic modes of expression from a literary, cultural and semiotic viewpoint.Undertaking a comprehensive analysis of a wide range of texts, from Charlotte Bronte’s Villette and Mary Shelley’s Frankenstein to Andy Warhol’s autobiographical writings, Rodas unpacks the unique signifiers of autistic language and explores how autism can be articulated textually. In doing so, Autistic Disturbances seeks to uncover the autistic voice in familiar literary works, emphasising the often overlooked aesthetic and cultural value of autistic modes of communication. In this highly original analysis, Rodas maintains that the aesthetic qualities regularly praised by critics when they manifest in literary texts – repetition, cataloguing, highly-detailed description – are often found in autistic expression, where they are marginalised by clinicians and educators. Rodas, however, demonstrates that these features of autistic expression, these unique cognitive and communicative practices, have also played a major role in shaping some of Western culture’s most treasured literary artifacts.Over the course of a fascinating interview, Professor Rodas speaks to me about the history of autism, the unique qualities of autistic expression and the intriguing manner in which these expressive forms have manifested in numerous canonical literary texts. Prof. Rodas also discusses the impetus for this revolutionary project and explains how working on this book has shaped not only her research, but also impacted her teaching practice.Miranda Corcoran received her Ph.D. in 2016 from University College Cork, where she currently teaches American literature. Her research interests include Cold-War literature, genre fiction, literature and psychology, and popular culture. She has published articles on paranoia, literature, and Cold-War popular culture in The Boolean, Americana, and Transverse, and contributed a book chapter on transnational paranoia to the recently published book Atlantic Crossings: Archaeology, Literature, and Spatial Culture. She blogs about literature and popular culture HERE and can also be found on Twitter. Learn more about your ad choices. Visit megaphone.fm/adchoices

What do werewolves, enslaved women and immortal beings have in common? And how can they shed light on contemporary questions of ableism and police brutality? In Bodyminds Reimagined: (Dis)ability, Race, and Gender in Black Women’s Speculative Fiction (Duke University Press, 2018), Sami Schalk argues that black women’s speculative fiction changes the rules of literary and textual interpretation by opening up productive spaces of conversation at the intersection of (dis)ability, race and gender. Schalk undertakes a close reading of a variety of genres of speculative fiction including science fiction and neo-slave narratives by authors such as Octavia Butler, Nalo Hopkinson and N.K. Jemisin. Her book shows the range of black women authors’ exploration and critique of marginalizing social and political structures and their visions for more just, equitable futures.Sami Schalk is an Assistant Professor of Gender & Women’s Studies at University of Wisconsin-Madison. Her interdisciplinary research focuses broadly on disability, race, and gender in contemporary American literature and culture, especially African American literature, speculative fiction, and women’s literature. She has published on literature, film, and material culture in a variety of peer-reviewed humanities journals.Annette Joseph-Gabriel is an Assistant Professor of French and Francophone Studies at the University of Michigan, Ann Arbor. Her forthcoming book, Decolonial Citizenship: Black Women’s Narratives of Resistance in the Francophone World examines Caribbean and African women’s literary and political contributions to anti-colonial movements.  Learn more about your ad choices. Visit megaphone.fm/adchoices

Autism as a condition has received much focused attention recently, but less attention has been paid to its politics. It is a condition that necessitates significant accommodations and interventions, which can be difficult for people with autism and their loved ones to obtain, depending on the state of autism public policy. Sociologist John J. Pitney argues that political science needs to more rigorously study autism policy and politics, as he outlines in his book The Politics of Autism: Navigating the Contested Spectrum (Rowman & Littlefield, 2015). In our interview, we explore the evolution of our understanding of autism, how public policy impacts the lives of autistic individuals, and suggestions for future research. For anyone with autism or their loves ones, this interview offers suggestions for meeting important needs and hope for a better future.John J. Pitney Jr., Ph.D. is the Roy P. Crocker Professor of American Politics at Claremont McKenna College. He is the author of The Art of Political Warfare and the coauthor of several books, including Epic Journey: The 2008 Elections and American Politics as well as After Hope and Change: The 2012 Election and American Politics. In addition to his scholarly work, he has held staff positions in the U.S. Congress and the New York State Legislature. He maintains several blogs, including Autism Policy and Politics.Eugenio Duarte, Ph.D. is a psychologist and psychoanalyst practicing in New York City and Miami. He treats individuals and couples, with specialties in gender and sexuality, eating and body image, and relationship issues. He is a graduate of the psychoanalytic training program at William Alanson White Institute, where he also chairs their monthly LGBTQ Study Group. He is also a contributing author to the book Introduction to Contemporary Psychoanalysis: Defining Terms and Building Bridges (Routledge, 2018). Learn more about your ad choices. Visit megaphone.fm/adchoices

We all know baseball as one of America’s fondest pastimes, but did you know there’s a version of the sport designed specifically for the blind? It’s called Beep Ball, and the players, with the exception of the pitcher, are all visually impaired. Founded by the National Beep Ball Association in... Learn more about your ad choices. Visit megaphone.fm/adchoices

The Americans with Disability Act passed in 1990, but it was just one moment in ongoing efforts to craft the meaning and practice of “good design” that put people with disabilities at the center. In their new book, Building Access: Universal Design and the Politics of Disability (University of Minnesota Press, 2017), Aimi Hamraie takes a “sledgehammer to history” in the spirit of one guerrilla activist group that they track in the archives—among many other people, objects, and historical contexts. Hamraie focuses on work around “access-knowledge”—that is, the forms of expertise that were considered legitimate ways of knowing and responding to disability through design. What has counted as legitimate access-knowledge, Hamraie argues, indicates designers’ goals: Was the aim of design to make productive workers, liberal consumers, or structures that materialized a commitment to spacial belonging? Who were the imagined users and how could new political priorities materialize in worlds already built? Answers to these questions made—and continue to remake—our material world and its frictions. Hamraie brings their training in feminist epistemology to never-before-accessed archival materials, along with an array of historical images and documents. The result is a persuasive, beautiful, and intrepidly researched book. Building Access torques received wisdom in disability studies, history of science, and architectural design, and models how to attend to research, writing, and publishing as a material practice.Hamraie is Assistant Professor at Vanderbilt University’s Center for Medicine, Health & Society, and Director of Vanderbilt’s Critical Design Lab.This interview was a collective effort among Vanderbilt faculty and graduate students in the course New Approaches to STS. For more information about using NBN interviews as part of pedagogical practice, please email Laura Stark or see the essay “Can New Media Save the Book?” in Contexts (2015). Learn more about your ad choices. Visit megaphone.fm/adchoices