What a Pain

In this episode, Glyn and Konrad initially discuss an animation that was made by Verena Hinze, researcher at the University of Oxford. This animation is about teenagers with chronic pain giving advice to other teenagers with chronic pain. The link to the animation on Youtube can be found below.Next, they talk to Professor Suellen Walker. She is regarded as a world-wide expert on neuropathic pain in children and adolescents.She is a Reader and Honorary Consultant in Paediatric Anaesthesia and Pain Medicine and has worked at Great Ormond Street Hospital (GOSH) since 2002. She has held a clinical academic post at UCL Institute of Child Health and GOSH since 2005. Animation: Advice on living with chronic pain from and for young people with chronic painhttps://www.youtube.com/watch?v=CW-YHWvB_lU&t=1sAuthors:Dr Glyn Williams is a Consultant paediatric anaesthetist and lead for the pain management service at Great Ormond Street Hospital, London.Dr Konrad Jacobs is a Consultant clinical psychologist and rehabilitation lead for the Oxford Centre for Children and Young People in Pain. Twitter: @konradjacobsContactPlease email Glyn and Konrad with comments and feedback: whatapainpodcast@gmail.comFollow Konrad on twitter: @konradjacobsPodcast reference (APA style):Jacobs, K. and Williams, G. (Hosts). (2023, September 6). What a Pain. (No.6) [Audio podcast episode]. Neuropathic pain. An interview with Suellen Walker. Hosted on Acast. See acast.com/privacy for more information.

In this episode, Glyn and Konrad talk to Sofi Fateh. Sofi is now 18, but developed chronic widespread pain when she was 12. Having seen many doctors, having had many tests and scans and different treatments which did not work, she finally entered a pain rehabilitation programme. Sofi explains her pain journey. Sofi's story is interesting, fascinating, emotional and tells us much about the journeys pain patients take. Hopefully it will be helpful for pain patients, those around them and healthcare professionals.You can find Sofi's book here::https://static1.squarespace.com/static/635c953701bf033911888116/t/643f5cd253452876c9a3349d/1681874157976/1600X2560_AND-KITES_EDITION-ONE_PHONE-TABLET.pdfYou can find a list of Paediatric pain management programmes around the world here:http://childpain.org/wp-content/uploads/2023/04/PedPainClinicList_23-1.11.23-CLEAN.pdfAuthors:Dr Glyn Williams is a Consultant paediatric anaesthetist and lead for the pain management service at Great Ormond Street Hospital, London.Dr Konrad Jacobs is a Consultant clinical psychologist and rehabilitation lead for the Oxford Centre for Children and Young People in Pain. Twitter: @konradjacobsContactPlease email Glyn and Konrad with comments and feedback: whatapainpodcast@gmail.comFollow Konrad on twitter: @konradjacobsPodcast reference (APA style):Williams, G. and Jacobs, K. (Hosts). (2023, August 3). What a Pain. (No.6) [Audio podcast episode]. A patient experience - an interview with Sofia Fateh PART 2 Hosted on Acast. See acast.com/privacy for more information.

In this episode, Glyn and Konrad talk to Sofi Fateh. Sofi is now 18, but developed chronic widespread pain when she was 12. Having seen many doctors, having had many tests and scans and different treatments which did not work, she finally entered a pain rehabilitation programme. Sofi explains her pain journey. Sofi's story is interesting, fascinating, emotional and tells us much about the journeys pain patients take. Hopefully it will be helpful for pain patients, those around them and healthcare professionals.You can find Sofi's book here::https://static1.squarespace.com/static/635c953701bf033911888116/t/643f5cd253452876c9a3349d/1681874157976/1600X2560_AND-KITES_EDITION-ONE_PHONE-TABLET.pdfYou can find a list of Paediatric pain management programmes around the world here:http://childpain.org/wp-content/uploads/2023/04/PedPainClinicList_23-1.11.23-CLEAN.pdfAuthors:Dr Glyn Williams is a Consultant paediatric anaesthetist and lead for the pain management service at Great Ormond Street Hospital, London.Dr Konrad Jacobs is a Consultant clinical psychologist and rehabilitation lead for the Oxford Centre for Children and Young People in Pain. Twitter: @konradjacobsContactPlease email Glyn and Konrad with comments and feedback: whatapainpodcast@gmail.comFollow Konrad on twitter: @konradjacobsPodcast reference (APA style):Williams, G. and Jacobs, K. (Hosts). (2023, July, 4). What a Pain. (No.5) [Audio podcast episode]. A patient experience - an interview with Sofia Fateh PART 1 Hosted on Acast. See acast.com/privacy for more information.

In this episode, Glyn and Konrad continue to talk to Julia Smith, specialist physiotherapist, and Anne Marie van Es, specialist occupational therapist. Both of them work at the Oxford Centre for Children and Young People in Pain (OXCYPP). They discuss the evidence base for their work, pacing in some depth, when to stop seeing patients, the difference between functional and biomechanical outcomes and dealing with complex patients. They also explain why they enjoy working with pain patients. This is the article Anne Marie discusses:Suder R, DeBoth KK, Carrick A, Davis J, Farrar B. A Systematic Review of Occupational Therapy-Related Interventions for Pediatric Chronic Pain. OTJR: Occupational Therapy Journal of Research. 2023;43(1):61-73. doi:10.1177/15394492221110544Authors:Dr Glyn Williams is a Consultant paediatric anaesthetist and lead for the pain management service at Great Ormond Street Hospital, London.Dr Konrad Jacobs is a Consultant clinical psychologist and rehabilitation lead for the Oxford Centre for Children and Young People in Pain. Twitter: @konradjacobsContactPlease email Glyn and Konrad with comments and feedback: whatapainpodcast@gmail.comPodcast reference (APA style):Williams, G. and Jacobs, K. (Hosts). (2023, July, 4). What a Pain. (No.4) [Audio podcast episode]. The role of physiotherapy and occupational therapy in pain management - part 2 Hosted on Acast. See acast.com/privacy for more information.

In this episode, Glyn and Konrad talk to Julia Smith, specialist physiotherapist, and Anne Marie van Es, specialist occupational therapist. Both of them work at the Oxford Centre for Children and Young People in Pain (OXCYPP). They discuss how they perceive their roles within a pain management programme, how it differs from the way they were trained and from the way OTs and PTs in other areas may work. They also give advice to OTs and PTs who work with pain patients but not within the context of a pain management programme. Julia and Anne Marie tell us their favourite place on earth, their pet hates, and who they admire in the pain world. Anne Marie also reveals why she was nearly thrown out of the cinema!Due to the length of the interview, this podcast has been split in 2.This is the article Konrad discusses:Jacobs K, Smith A, Heathcote LC, Caes L. Which passengers are on your bus? A taxonomy of the barriers adolescents with chronic pain face in achieving functional recovery. Eur J Pain. (2021) 25:348–58. doi: 10.1002/ejp.1673Authors:Dr Glyn Williams is a Consultant paediatric anaesthetist and lead for the pain management service at Great Ormond Street Hospital, London.Dr Konrad Jacobs is a Consultant clinical psychologist and rehabilitation lead for the Oxford Centre for Children and Young People in Pain. Twitter: @konradjacobsContactPlease email Glyn and Konrad with comments and feedback: whatapainpodcast@gmail.comPodcast reference (APA style):Williams, G. and Jacobs, K. (Hosts). (2023, June, 15). What a Pain. (No.3) [Audio podcast episode]. The role of physiotherapy and occupational therapy in pain management - part 1 Hosted on Acast. See acast.com/privacy for more information.

Dr. Jeremy Gauntlett-Gilbert, a Principal Clinical Psychologist and Research Lead at the Bath Centre for Pain Services, dives into the complex interplay between chronic pain and autism. He discusses the unique challenges autistic individuals face in perceiving and managing pain and emphasizes the necessity for tailored rehabilitation strategies. The conversation also touches on the importance of communication between clinicians and neurodiverse patients, shedding light on how preconceived beliefs can shape pain experiences.

In this pilot episode we will be discussing why we started doing this podcast. We will also have a discussion with Dr Alison Bliss, consultant paediatric anaesthetist at Leeds General Hospital and lead for the paediatric pain management service in Leeds. We had a fascinating discussion about her journey into pain, her service, barbecues on fire, and complex patients. Glyn and Konrad also found themselves flummoxed by the problem of pocket-less trousers!Authors:Dr Glyn Williams is a Consultant paediatric anaesthetist and lead for the pain management service at Great Ormond Street Hospital, London.Dr Konrad Jacobs is a Consultant clinical psychologist and rehabilitation lead for the Oxford Centre for Children and Young People in Pain. Follow Konrad on twitter: @konradjacobsContact: Please email Glyn and Konrad with comments and feedback: whatapainpodcast@gmail.comPodcast reference (APA style):Jacobs, K., and Williams, G. (Hosts). (2023, May 11). What a Pain. (No.1) [Audio podcast episode]. In Pilot episode: What a Pain.https://feeds.acast.com/public/shows/62f7e5928606e40012ca9129 Hosted on Acast. See acast.com/privacy for more information.