In this engaging discussion, Soph Myers-Kelley, a medical librarian, and her mother, retired educator René Myers, open up about their shared journey with Ehlers-Danlos Syndrome. Diagnosed one year apart, they delve into the emotional and physical challenges of living with a chronic condition. The pair reflect on their deepening bond, navigating pain, and the significance of self-advocacy in healthcare. They also share insights on finding joy and resilience amid struggle, making this conversation as enlightening as it is heartfelt.
