Luke Rosen
Parent-advocate and founder of the KIF1A.org foundation who co-led efforts to find treatments for his daughter Susanna, sharing his family's experience caring for a child with KIF1A neurodegenerative disease.
Best podcasts with Luke Rosen
Ranked by the Snipd community
Jan 30, 2026 • 43min
The Path with Becky Quick: Finding Hope 1/30/26
Dr. Stanley Crooke, founder of n-Lorem and pioneer of antisense oligonucleotide therapy, and Luke Rosen, parent-advocate who founded KIF1A.org after his daughter’s diagnosis. They discuss ultra-rare KIF1A disease, how personalized ASO treatments are developed and delivered, the emotional and logistical journey of seeking care, and barriers families face accessing research and therapies.
