Lara Bloom, President and CEO of The Ehlers-Danlos Society, is a dynamic patient advocate focused on transforming care for those with EDS and HSD. In this conversation, she unveils the ambitious Road to 2026, aiming to align global policies and education. Blooms discusses the urgent need for early diagnosis, highlights research gaps, and critiques outdated medical attitudes. With insights into the Society's evolving strategies, Lara inspires hope for meaningful changes in care and advocacy, urging patients to actively participate in their health journeys.
