Kate Detwiler

Parent Advocate and Parent Researcher. Program Manager for Complex Care at Children's National Hospital, also a parent of a child with a rare disease and medical complexity.

Best podcasts with Kate Detwiler

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Jul 7, 2025 • 27min

Families Face Ethical Challenges More Often Than They Change a G Tube: Rethinking Our Care

Miriam Shapiro, a pediatric intensivist and expert in bioethics, joins parent advocate Kate Detwiler, a Program Manager for Complex Care, to tackle the ethical challenges families face when caring for children with chronic conditions. They discuss insights from a survey analyzing parental stresses and the need for improved resources. The conversation emphasizes collaborative ethics consultations and the importance of including diverse perspectives in healthcare decision-making, pushing for systemic changes that support families in navigating complex medical landscapes.

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