James Coney
News Projects editor at the Sunday Times and father of Charlie, who shares his family’s twelve-year search for a diagnosis and the impact of a genetic breakthrough on their lives.
Best podcasts with James Coney
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Dec 24, 2025 • 42min
Best of 2025: My son Charlie - and the breakthrough that changed our lives
James Coney, News Projects Editor at the Sunday Times, shares his poignant journey as the father of Charlie, who faced developmental challenges from birth. He recounts the family's 12-year quest for answers, leading to a breakthrough through the 100,000 Genomes Project. A transformative phone call revealed a genetic cause linked to Charlie's symptoms and identified a new disease gene, RNU4-2. The emotional connection with other families and the formation of a support group provides a beacon of hope and community.
Feb 28, 2025 • 42min
My son Charlie - and the breakthrough that changed our lives
James Coney, News Projects Editor at The Sunday Times, shares the heartfelt journey of his son Charlie, who faced significant developmental challenges. Their life changed dramatically after a breakthrough phone call revealed that Charlie's DNA played a crucial role in a major scientific discovery. Coney reflects on the emotional struggle of navigating unknowns and the relief of finally getting answers. He emphasizes the importance of community support for parents facing similar challenges, igniting a sense of hope among families dealing with developmental delays.
