Ethan Perlstein

Ethan Perlstein, founder of CureTopia, discusses revolutionary approaches to addressing rare diseases that affect over 30 million people in the U.S. He highlights the misleading notion of rarity and the neglect from Big Pharma. Perlstein advocates for decentralized science and blockchain as transformative tools to empower patient communities and streamline drug development. The conversation also explores drug repurposing, community engagement, and the emotional journeys of affected families, all while pushing for innovative funding models and greater awareness.