The Incubator #329 - Neopedia: The Wikipedia of Neonatology for Families
In this episode of The Incubator Podcast, Ben and Daphna are joined by Fabiana Bacchini, Dr. Tiffany Gladdis, and Bianka Gallina to discuss the development and launch of Neopedia, a free, multilingual online platform designed to support families navigating the NICU and beyond.
The team explains how Neopedia was created by an international group of parent advocates and medical experts to bridge the information gap many families face during and after neonatal hospitalization. They walk through the site’s structure—including tabs on pregnancy, NICU life, going home, and long-term outcomes—and explain how content was written to be accurate, accessible, and supportive without being overwhelming.
The conversation also explores how Neopedia addresses mental health, the importance of family-centered education, and how the platform is intended for both parents and clinicians. The episode highlights why this resource fills a critical need: empowering parents to ask better questions, understand what’s happening, and advocate for their children across different stages and settings.
Visit neopedia.org to explore the site. Available in English, French, German, Spanish, and Italian.
As always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below.
Enjoy!