Maria Picone, co-founder TREND.Community and Antonio Maltese, student with Huntington's Disease talk about the challenges of finding valid information about rare diseases, the value of community support in discovering novel approaches to treatments, providing evidence to pharmaceutical companies about little understood symptoms, and advocating for awareness about rare diseases particularly during Rare Disease week and Rare Disease Day February 29.
#rarediseases #huntingtonsdisease
HopeForHuntingtons.com
TREND.Community
Download the transcript here
Empowered Patient Podcast