Jayne Walsham, mother of the late Jodi Walsham, shares her daughter's heartbreaking journey to highlight the dangers of lengthy ADHD assessment waiting lists. She discusses the misconceptions surrounding ADHD as a neurodevelopmental condition, not just a mental health issue. Jayne emphasizes the urgent need for timely assessments to prevent systemic failures that lead to tragedies. She also talks about her involvement in the Baton of Hope charity, dedicated to supporting those affected by mental health challenges and advocating for better care.
ADHD, as a neurodevelopmental condition, can lead to severe mental health crises when left unrecognized, impacting countless individuals awaiting assessment.
Jane's account emphasizes the critical need for better education and awareness about ADHD to improve responses from healthcare professionals and support networks.
Deep dives
Understanding ADHD and Its Impact on Mental Health
ADHD is characterized as a neurodevelopmental condition, distinct from mental health disorders. When left unrecognized and unmanaged, ADHD can have severe implications for the mental well-being of those affected. Many individuals with ADHD experience co-occurring mental health issues such as depression and anxiety, often stemming from societal misunderstandings and the stigma surrounding their symptoms. This environment can exacerbate feelings of distress, leading to tragic outcomes if adequate support and compassion are not provided.
Personal Stories and the Journey for Diagnosis
Jane's narrative reflects the struggles her daughter Jodie faced in seeking an ADHD and autism diagnosis, highlighting the systemic failures in mental health services. Initially dismissed by her mother and professionals, Jodie's signs of neurodiversity went unnoticed until it was too late. Jane emphasizes the misinterpretation of Jodie’s behavior as a lack of discipline rather than a cry for understanding and help. This lack of recognition and timely intervention contributed to her worsening mental health and ultimately, her tragic death.
The Ripple Effects of Misdiagnosis and Ignored Symptoms
Jane's account illustrates the profound impacts of misdiagnosis and the societal tendency to overlook ADHD, particularly in individuals who do not fit the stereotypical profile often associated with it. Jodie thrived in familiar environments but struggled significantly when faced with new situations and peer pressure during her transition to middle school, where her anxiety escalated. Despite showing intelligence and creativity, her internal struggles remained unaddressed, leading to a crisis that mental health services neglected. These experiences highlight the urgent need for more comprehensive education and awareness regarding ADHD and supporting those who are neurodivergent.
Advocacy for Systemic Change and Awareness
The podcast fosters a call to action for systemic changes in how mental health and neurodevelopmental conditions are approached, especially regarding ADHD. Jane and others advocate for better training and understanding among healthcare professionals, arguing that a lack of awareness directly affects the quality of care patients receive. The conversation shifts toward the importance of peer support and community engagement, stressing that collective efforts can create the necessary changes in public policy and societal perceptions. The creation of organizations dedicated to ADHD awareness and support emerges as a crucial step toward preventing further tragedies, showcasing that education is integral in saving lives.
This episode is dedicated to Jodi Walsham and to all ADHD adults tragically no longer with us. Jodi's Mother Jayne shares Jodi's story on World Mental Health Day in ADHD Awareness Month to raise awareness about the serious danger to the lives of what is underestimated at 196,000 vulnerable people currently on waiting lists for ADHD assessment in the UK.
It is a common misconception that ADHD is a mental health condition. It is in fact a Neurodevelopmental condition. But in many cases the impact of battling through life with unidentified and unmanaged ADHD, and the trauma this can bring to life circumstances can lead to commonly co-occurring mental health conditions and severe mental health crisis; and as in Jodi's case - who was also awaiting assessment for Autism - the lack of support available resulted in tragedy.
TRIGGER WARNING: There are very triggering topics covered from the very start of this episode, including: suicide, suicidal ideation, self harm, drug addiction, premature loss of life, bullying, relationship struggles, depression, anxiety, self harm, divorce, traffic accidents.
If you are struggling, please do not suffer in silence. YOU ARE NOT ALONE. There is free and immediate support out there so please REACH OUT FOR HELP.
Jayne is heavily involved with the suicide prevention charity Baton of Hope. I am so grateful to Jayne for all of her support and for allowing us to hear about and from her wonderful daughter Jodi. Love and Scars, written and performed by Jodi Walsham
ADHDAF+ Charity is dedicated to Jodi Walsham, to all of our absent friends and to our 'absent minded' friends, the Leopard Print Army. Though in its infancy, ADHDAF+ Charity number: 1208650, aims to connect and empower ADHD adults of marginalised genders in England and Wales, with plans to extend into Scotland once we are properly up and running.
The website and domain are currently connecting, but if its not there yet, you will be able to find out more at www.adhdafplus.org.uk and social media will be coming very soon: @adhdafplus
The cover artwork for this episode was selected by Jayne as a fitting tribute to her daughter and to convey the message of this crucial conversation. It was taken on ADHDAF Day '23 by Gem Clack Photography
In a system so broken that people in mental health crisis could be waiting the best part of a decade for life changing and in many cases life saving ADHD assesment, diagnosis and treatment; what we do have is each other.