The Readout Loud
334: Pharma silence on RFK Jr. & parents trying to develop gene therapies for their children
Dec 12, 2024
Jason Mast, a colleague from STAT, dives into the intricate world of gene therapy, spotlighting a father's inspiring quest for solutions to help his child. They discuss the significant hurdles in this field, from financial challenges to unique fundraising efforts by families. Meanwhile, the conversation touches on why pharmaceutical companies remain silent on Robert F. Kennedy Jr.'s criticisms, exploring the broader implications for health policy. The emotional journey of families navigating rare conditions sheds light on the urgent need for effective therapies.
34:30
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Quick takeaways
- The pharmaceutical industry's silence on Robert F. Kennedy Jr.'s nomination suggests a strategic shift in its lobbying approach under the Biden administration.
- Despite advances in gene therapy, many families are left to navigate high costs and limited development for rare genetic treatments, exemplified by individual advocates like Terry Pirvilakis.
Deep dives
Pharma's Silence on RFK Jr.
Robert F. Kennedy Jr. has criticized the pharmaceutical industry for alleged corruption and public health harms, yet the industry remains silent regarding his nomination for HHS secretary. Despite his long-standing negative rhetoric about drug makers and their influence on government, current reports indicate that pharmaceutical companies are not actively lobbying against his confirmation. Analysts suggest that the industry may be assessing the broader implications of his potential policies or prioritizing other regulatory concerns related to the FDA. This situation reflects a possible shift in the pharmaceutical industry's approach to lobbying under the Biden administration, possibly indicating weakened influence.
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