The Documentary Podcast Living with motor neurone disease
Oct 25, 2025
The conversation dives into the lives of individuals diagnosed with Motor Neurone Disease, revealing the emotional challenges and daily adjustments they face. Guests share personal stories of adapting to life changes, from losing jobs to redefining relationships with family. There's insightful discussion on the potential links between elite athletes and MND, alongside reflections on long-term survival. The importance of creating lasting memories and finding peace in the moment shines through, despite the uncertainty of the future.
AI Snips
Chapters
Transcript
Episode notes
Heartbreak Telling Family
- James describes the heartbreak of telling his mum and young sons about his diagnosis and focuses on the uncertain future.
- He says they are concentrating on the present rather than worrying about long-term outcomes.
Daily Tasks Over Work
- Gillian, an Oxford maths researcher, says MND has affected daily tasks more than her work so far.
- She reports slower walking, falls, and weakening hands that make eating and manipulating objects harder.
Barber Forced To Stop Working
- James, a former barber, explains he had to stop cutting hair as his arms weakened and now relies on family for dressing and feeding.
- He uses social media to share his life and raise awareness while adapting slowly to increasing dependence.