Seeing Death Clearly Facing Grief and Life After Child Loss with Jason Tuttle
Grief can change the course of a life, and for Jason Tuttle, it became both a personal journey and a calling to help others. As a father and caregiver, he lived through the daily realities of hospital stays, medical decisions, and profound loss. After the death of his son in January 2022, Jason began to share his experiences with grief, end-of-life planning, and conscious living as a way to heal and to guide others through their own journeys.
Jason and his wife were in their twenties when their first son was born with Eagle-Barrett syndrome, a rare condition that required weeks in the NICU. Over time, both of their children developed severe developmental delays and epilepsy, and Jason became the full-time medical caregiver. He spent nearly every hospital day at their sides, balancing hope with the hard truths of illness. When his son died, grief came in waves of anger, isolation, and heartbreak. Therapy and journaling offered a way to process, and writing publicly helped him connect with others who felt the same.
Today Jason continues this work by creating resources, speaking about grief and dying, and sharing his perspective on legacy and healing. His journey shows how end-of-life care and death doula work are not only about preparing for death, but also about living with purpose and love. This conversation is an honest reflection on caregiving, conscious living, and the ways grief can shape a meaningful path forward.
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