Functional Neurological Disorder with Simone Mangelsdorf-Collett
Apr 13, 2025
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Simone Mangelsdorf-Collett, a Senior Clinical Neuropsychologist specializing in Functional Neurological Disorder (FND), dives deep into the complexities of this often-misunderstood condition. She explains how FND differs from other neurological disorders like epilepsy and Parkinson's. The discussion highlights its historical context, the stigma surrounding women's health, and the links between FND and neurodivergence, especially among women. Simone also offers insights into treatment approaches and the importance of advocacy in reshaping perceptions of FND.
Functional Neurological Disorder (FND) represents a significant challenge characterized by neurological symptoms that lack structural causes, often likened to a 'software glitch'.
The historical context of FND has evolved from stigmatization rooted in misconceptions about women's health to a recognition of its neurobiological underpinnings.
Effective management of FND necessitates a multidisciplinary approach, involving neurologists, psychologists, and physiotherapists to improve patient outcomes and address symptoms comprehensively.
Deep dives
Announcement of Live Q&A Event
A live Q&A event is scheduled for June 27th, allowing listeners to ask their questions directly and interact more closely with the hosts. This is a new initiative, inviting both long-time fans and newcomers to engage from their own homes. Ticket holders will have access to a recording if they cannot attend the live session. This inclusive format aims to foster community and connection among listeners.
Functional Neurological Disorder (FND) is defined as a condition caused by issues in the nervous system's functioning rather than structural damage, likened to a 'software glitch' rather than a 'hardware glitch'. It encompasses various neurological symptoms that can appear similar to other disorders but lack identifiable physical causes, leading to confusion among sufferers about the nature of their symptoms. Often, patients are informed that their brain scans are normal, contributing to the misunderstanding and stigma surrounding their condition. FND manifests in diverse forms, including movement and cognitive disorders, emphasizing the complexity of its symptoms and their impact on quality of life.
Historical Context and Stigmatization of FND
Historically, conditions resembling FND have been misunderstood and labeled negatively, often being attributed to psychological factors or even supernatural explanations. The discourse has evolved from notions of hysteria, which framed women's symptoms as mere emotional responses, to recognizing the neurobiological underpinning of FND. The transition to a more nuanced understanding acknowledges that these symptoms are real and disabling, not feigned or imagined. Despite advancements in medical science, stigmatization persists, complicating diagnosis and treatment efforts for individuals with FND.
Challenges and Misunderstandings in Diagnosis
Many individuals with FND face significant delays in diagnosis, which can exacerbate symptoms and lead to increased disability. Misconceptions about FND often result in patients being dismissed or mischaracterized, which further contributes to their distress and sense of isolation. Education on FND within the medical community remains crucial, as professionals often lack awareness of its complexities, leading to misdiagnosis or unnecessary referrals. Advocating for oneself and seeking clarity on symptoms is essential for those navigating the healthcare system.
Strategies for Treatment and Support
Effective management of FND typically involves a multi-disciplinary treatment approach, including neurologists, psychologists, and physiotherapists. Understanding the condition through proper education can often lead to improved outcomes even without extensive treatment interventions. Key therapeutic strategies involve retraining movements through physiotherapy and addressing cognitive symptoms through psychological support. Connecting patients with resources, community support, and advocacy groups is vital in helping them navigate their health journey and access appropriate care.
We’re super excited to bring you this week’s episode with Senior Clinical Neuropsychologist, Simone Mangelsdorf-Collett (she/her). We chat with Simone about Functional Neurological Disorder (FND) – or, as Simone puts it “the most common disorder you’ve never heard of”. Simone specialises in FND, neurodegenerative syndromes, and movement disorders, and practices out of Yarra City Psychology in Richmond, Melbourne. She is experienced in both ends of patient care, including assessment and diagnosis and rehabilitation and intervention.
If you’ve been wondering about FND, this episode is for you! We cover:
What is Functional Neurological Disorder (FND), and how does FND differ from other neurological disorders (like epilepsy, stroke, Parkinson’s etc.)
What does the term ‘functional’ mean, in this context?
The historical context of FND and how our understanding of this condition has evolved over time.
Some of the currently known mechanisms behind FND, including predictive coding theory.
Some common vulnerabilities and triggers for FND.
The overlap between FND, neurodivergence, and gender.
Simone takes us through treatment options for FND and who would be involved in the treatment team.
How Simone came to specialise in FND and her work in FND advocacy and education.
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