Bendy Bodies with Dr. Linda Bluestein My Essential EDS Advice | Office Hours (Ep111)
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Sep 19, 2024 Dr. Linda Bluestein tackles listener questions on hypermobile Ehlers-Danlos syndrome and POTS, offering essential insights on diagnosis and symptom management. Discover the importance of effective communication with healthcare providers and learn valuable pacing strategies to balance activity and rest. Hear about simple hacks for managing hypermobility-related pain, and explore how chronic illness can impact relationships. This conversation provides practical advice for anyone navigating the complexities of living with these conditions.
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Importance of Diagnosis
- A correct diagnosis validates patients and guides treatment, although symptoms remain the priority.
- Overlapping conditions make precise diagnosis complex, so approach appointments with an open mind, not a fixed diagnosis.
Preparing for Appointments
- Organize symptoms and information succinctly yet completely before doctor appointments.
- This helps doctors grasp the full picture and facilitates better communication.
Dr. Bluestein's Diagnostic Journey
- Dr. Bluestein felt validated by her 2012 EDS diagnosis, although her doctor offered limited solutions.
- This inspired her to improve EDS quality of life, becoming her own first patient and developing interventions.