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Psychedelics Today

PT546 – Psychedelic Outlaws: Cluster Headaches, Citizen Science, and the Story of ClusterBusters, with Joanna Kempner, Ph.D.

Sep 10, 2024
Joanna Kempner, Ph.D., is an associate professor at Rutgers University and the author of 'Psychedelic Outlaws.' She delves into the groundbreaking work of ClusterBusters, a nonprofit exploring psychedelics' potential to alleviate cluster headaches. The conversation highlights the lack of funding for these urgent medical needs and the vital role of patient advocacy. Kempner also discusses the innovative use of internet communities for sharing knowledge and the community's strength in finding hope and healing amidst chronic pain challenges, all while navigating ethical dilemmas in research.
01:01:36

Episode guests

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Quick takeaways

  • Psychedelics like psilocybin and LSD show potential in treating cluster headaches, despite their stigma and legal challenges.
  • The cluster headache community thrives on emotional support and shared experiences, creating bonds that aid in healing beyond medication.

Deep dives

Understanding Cluster Headaches

Cluster headaches are recognized as one of the most painful conditions a person can experience, often described as more severe than labor pains or gunshot wounds. Unlike migraines, which affect a larger population, cluster headaches are rare, impacting approximately 300,000 Americans. Patients endure attacks that last between 15 to 180 minutes and may occur multiple times daily, leading to a cycle that can span weeks to months before remission. This intense pain often correlates with a high rate of suicidal ideation among sufferers, highlighting the urgent need for effective interventions and understanding.

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