The Incubator NEC SYMPOSIUM - 🙋♀️ Erin Umberger - From Tragedy to Advocacy: A Discussion on NEC Awareness
Have you ever felt the power of a story? That's exactly what unfolded in our heartfelt conversation with Erin as she shared her profound personal journey with necrotizing enterocolitis (NEC). Her world was turned upside down when baby Sarah, born prematurely and diagnosed with NEC, tragically passed away. This devastating loss sparked a mission in Erin. Her dedication to raising awareness about this life-threatening disease is a testament to her strength and resilience.
To conclude our conversation, we tackled a topic often overlooked - the need for robust support for bereaved parents and families. Our guests illuminated how essential it is to continue care for the family unit after the loss of a baby. We also examined the profound impact of small acts of kindness from healthcare providers. Erin’s heartfelt appreciation for the caregivers in the NICU was palpable, reminding us of the precious lives we are fighting for and reinforcing the importance of sharing stories like Sarah's. So join us, as we navigate the challenging terrain of NEC, and explore how each of us can contribute to this vital cause.
As always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below.
Enjoy!