Jade Barclay and Dale Trevor discuss challenges in healthcare research, bridging the divide between research and patient experience, and systemic changes and collaboration in healthcare. They highlight the importance of inclusive clinical trials, addressing the challenges in research, and consumer involvement in healthcare innovation.
Healthcare research often overlooks the diversity of clinical realities and neglects severely affected or multi-condition patients.
Shifting healthcare research methodologies to align patient experiences with clinical outcomes can address research limitations and improve treatment options.
Deep dives
Improving the Healthcare System
The podcast episode discusses the process of improving the healthcare system, highlighting the challenges in executing and implementing solutions. It emphasizes the importance of the initial phase of problem identification and the actionable and measurable nature of the execution phase. However, it states that the heart of the process lies in the messy and complex noodle part, which involves unknowns, thought provocations, reflections, and the need for different perspectives. The episode showcases Curiosity Camp, organized by the Digital Health CRC, where participants from various backgrounds work together to address healthcare challenges. The aim is to build evidence-based approaches and find innovative solutions with a focus on education and capacity building for future health leaders.
Inclusion of Multimorbidity in Medical Research
The podcast episode delves into the issue of multimorbidity, which is prevalent in real-life clinical settings but often excluded from medical research. It highlights the implications of excluding individuals with multiple chronic conditions from research samples and the lack of generalizability to the actual clinical population. The episode emphasizes the need to include patients with multimorbidities in research studies to ensure that evidence-based approaches cater to their specific needs. It discusses the limitations of current research methods and calls for a shift in approach to consider the real patient experience and inform future research and treatment options.
Gender Representation in Clinical Research
The podcast episode sheds light on the lack of gender representation in clinical research, particularly in phase one trials. It discusses how gender biases affect research outcomes and the potential risks of excluding specific genders from the research process. The episode argues for a more inclusive approach that considers the different effects of interventions across genders, ensuring that research findings apply to the broader population. It acknowledges the need to overcome existing biases and challenges in research practices to provide better healthcare and treatment options for all genders.
System-Level Changes for Healthcare Improvement
The podcast episode explores the need for system-level changes in healthcare to address the growing challenges of chronic diseases and multiple morbidities. It emphasizes the importance of understanding the entire patient journey and the need for comprehensive care. The episode discusses the work being done at Curiosity Camp to identify the key drivers and levers for system change, focusing on how systems are designed and their impact on research, training, and healthcare norms. The aim is to improve patient flow, reduce hospital visits, and enhance the knowledge and collaboration of multidisciplinary teams. The episode highlights the potential of digital health solutions to support system-level improvements.
This is part one of a special two-part series of Talking HealthTech, recorded at the Digital Health CRC Curiosity Camp.
In these episodes, we dive into discussions about healthcare research and systemic change. Our guests in this episode, Jade Barclay and Dale Trevor, bring diverse perspectives on patient advocacy, equity in clinical trials, and healthcare innovation. These conversations were held amongst a group of digital health researchers, industry experts, patient advocates, and other key healthcare stakeholders, all gathered for a collaborative exploration at the Curiosity Camp.
Key Topics:
Challenges in Current Healthcare Research: Jade Barclay addresses the critical issue of representativeness in clinical trials, highlighting how current research often overlooks the diversity of clinical realities, particularly neglecting those severely affected or with multiple health conditions.
Bridging the Divide Between Research and Patient Experience: Dale Trevor emphasises the need for a shift in healthcare research methodologies, advocating for multi-disciplinary teams that align patient experiences with clinical outcomes and represent the complexity of real-world patient conditions.
Systemic Changes and Collaboration in Healthcare: The episode explores the necessity for systemic changes in the healthcare industry to better address chronic conditions and improve healthcare equity. It also discusses the role of collaboration and community networks in driving innovation and improving patient outcomes.
Check out the full discussion in this episode and explore the complete show notes on the Talking HealthTech website.
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