Make Visible: Complex Chronic Illness Explored

#18 Leading research, delivering hope: The Open Medicine Foundation’s mission with Linda Tannenbaum

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Jul 11, 2025
Linda Tannenbaum, the founder and CEO of the Open Medicine Foundation, discusses her mission to transform ME-CFS research and patient care. She highlights the organization’s collaboration with over 200 scientists across six global research centers. Tannenbaum dives into innovative studies like the LIFT trial for effective treatments, AI-powered biomarker discoveries, and the significant role of patient feedback in research. The conversation emphasizes the foundation's commitment to increasing awareness and finding a cure for chronic complex diseases.
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INSIGHT

Patient-Funded Research Model

  • Linda Tannenbaum explains OMF's funding comes almost entirely from patients and families.
  • This grassroots funding model shaped OMF's collaborative, patient-centred research strategy.
ANECDOTE

Harvard Meeting Sparked Collaboration

  • Linda describes convening researchers at the Harvard Club to map top research priorities.
  • That meeting launched a collaborative approach that structured OMF's early work and advisory board.
ANECDOTE

Crypto Gift Scaled The Foundation

  • Linda recounts the unexpected Pineapple Fund donations that transformed OMF's capacity.
  • The anonymous crypto gifts totaled about five million dollars and enabled major centre openings.
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