S3.08 Nothing about me without me: involving patients in genomic research

Research into genetic conditions relies on information from patients and their families, whether that’s detailed health records or genomic data. As the tools and techniques for DNA and data analysis become cheaper and more organisations get in on this fast-growing field, it’s vital to make sure that the most valuable research resource - human lives - doesn’t get overlooked in the rush. In this episode, recorded at the recent Festival of Genomics in London, we find out why it’s so important to make sure that both academic and commercial research studies are done with rather than on participants.

Full show notes, transcript, music credits and references online at GeneticsUnzipped.com

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Genetics Unzipped is written and presented by Kat Arney with audio production by Hannah Varrall. This podcast is produced by First Create the Media for the Genetics Society - one of the oldest learned societies in the world dedicated to supporting and promoting the research, teaching and application of genetics.