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TBD | Is Sickle Cell Anemia…Cured?
Nov 24, 2024
Gina Kolata, a medical reporter for the New York Times, joins Deb Cromer, mother of Kendrick, the first recipient of commercially approved gene therapy for sickle cell anemia. They share Kendrick's journey through this groundbreaking treatment, highlighting the emotional and physical challenges faced by families. The conversation reveals the hopes and fears surrounding this 'cure' and discusses access to innovative healthcare solutions. Deb reflects on her family's resilience, while Kolata emphasizes the importance of empathy in medical care.
35:06
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Quick takeaways
- Kendrick's gene therapy journey illustrates the potential of innovative treatments to transform lives for sickle cell anemia patients.
- The challenges of treatment access reveal systemic healthcare disparities affecting marginalized communities, highlighting urgent needs for equitable solutions.
Deep dives
Understanding Sickle Cell Anemia
Sickle cell anemia is a genetic disorder characterized by the abnormal shape of red blood cells, which can lead to severe complications, including blocking blood flow and causing excruciating pain. The disease affects over 20 million people globally, with a significant concentration among Black communities in the U.S. Kendrick, a 12-year-old boy living with sickle cell anemia, faced numerous health challenges from a young age, including frequent pain crises that often kept him from engaging in normal childhood activities. His family's journey reveals deep emotional and physical struggles associated with managing this lifelong condition, and highlights the urgent need for effective treatments.
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