Aging as an Autistic Person with Prof. Sandra Thom-Jones

14 snips

Nov 3, 2024

In this conversation, Professor Sandra Thom-Jones, an autistic author and advocate, shares her insights on aging as an autistic individual. She discusses the often 'invisible' nature of older autistic adults and the unique support they require. Sandra explores how generational differences shape perceptions of autism, the challenges of navigating later life transitions like menopause and retirement, and the need to move beyond neuro-normative expectations about aging. She also offers valuable tips for finding joy during retirement as an autistic person.

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INSIGHT

Neurodivergence Means Difference Not Deficit

Neurodivergence means brains wired differently, not faulty.
The neurodiversity concept reframes difference as variation, not disorder.

ANECDOTE

Late Autism Recognition Through Children

Sandra recognized her autism gradually after her sons were diagnosed.
Conversations with her children encouraged her to explore her own autistic identity.

INSIGHT

Diagnosis Validates and Enables Support

Diagnosing adults is costly and limited, hindering access to supports.
Diagnosis validates identity and enables advocacy and accommodations.

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This week Monique interviews Professor Sandra Thom-Jones about aging as an autistic person. Sandra is an autistic author, artisan, academic, and advocate. She provides consultancy services to education, employment, and healthcare providers, and supports for autistic people, through her consultancy ‘Autistic Professor’. Sandra is the author of Growing in to Autism, and she has undertaken numerous research projects in partnership with the autistic community on the experiences of autistic people and the knowledge and attitudes towards autism in the community; including research that won the Autism CRC’s 2019 and 2021 awards for research translation and the 2022 award for inclusive research.

Monique and Sandra cover:

Sandra’s experience of her neurodivergence throughout her life and her path to identifying her autistic neurotype.
Why do older autistic adults tend to be ‘invisible’ to society at large, and what factors contribute to the support needs of this population?
Generational trends in the understanding of and meaning associated with an autism diagnosis, and the implications for disclosure and self-advocacy.
The unique needs of autistic folk when navigating later stages of life like menopause, increasing healthcare needs, aged care, retirement, and managing family changes and transitions.
The importance of discarding neuro-normative expectations about what aging or retirement ‘should’ look like, and Sandra’s tips for a joyful retirement as an autistic person.

You can find more of Sandra’s work through her website – www.autisticprofessor.com – or follow her on Facebook (@autisticprofessor) or Instagram (@sandrathomjones_au_author).

Get a copy of Sandra’s book, Growing in to Autism, and pre-order her upcoming book, Autistics in Academia, through Cambridge University Press.

Follow Sandra on socials to stay updated on her next book, on the experiences of autistic people in the workplace!

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