The Incubator #375 - 🟠CHNC 2025 COVERAGE - Family Centered Care Task Force - Nothing about us without us
This discussion features Dr. Malathi Balasundaram and Morgan Kowalski, leaders of the CHNC Family-Centered Care Task Force, outlining how Family Partnership Councils integrate families as true partners in NICU care, policy development, and quality improvement. Instead of providing feedback after decisions are made, families co-create guidelines and initiatives from the start, promoting empowerment and more meaningful parent presence. They describe barriers such as recruitment, compensation, scheduling, and staff uncertainty, and offer practical strategies including foundation support, transparent role expectations, and diversifying family representation. The Task Force’s webinars, office hours, and survey-driven improvement tools help units build sustainable, equitable, family-centered practices across both NICU and follow-up care settings.
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Enjoy!