Episode 509: LIVE from ILADS: Dr. Leona Gilbert - The Importance of Publishing Data in the Lyme Disease Community

Live from the International Lyme and Associated Diseases Society (ILADS) Conference, Dr. Leona Gilbert joins Tick Boot Camp to discuss the critical role of publishing data in the Lyme disease community. She highlights the differences between researchers and clinicians, the challenges doctors face in treating Lyme patients, and how patient data can help legitimize treatment approaches.

Key Takeaways:

• Researchers can empower clinicians to publish case studies and data, providing credible evidence for treatment methods.
• AI tools are making the publishing process more streamlined and accessible for clinicians.
• Patient groups are collecting valuable data through surveys that can be leveraged for research and publication.
• Involving patients as co-authors on research papers can provide important perspectives.
• Researchers are the "unsung heroes" in the Lyme disease community, working behind the scenes to support clinicians and patients.

Topics Covered:

• ILADS Conference and Travel
• Importance of Publishing in Medical Research
• Challenges in Lyme Disease Research and Clinical Practice
• Role of Researchers and Clinicians in Lyme Disease Treatment
• Empowering Patients in Research and Data Collection

Action Items:

• Encourage clinicians to collaborate with researchers to publish their case studies and data.
• Utilize AI tools to help clinicians set up patient databases and mine data for publishing.
• Empower patient groups to publish their survey data and collaborate with researchers.
• Explore having patients as co-authors on published case studies and research.

Resources & Links:

• Follow the latest ILADS updates at ILADS.org
• Learn more about Dr. Leona Gilbert
• Stay connected with Tick Boot Camp: Website | Instagram | Facebook | YouTube | TikTok | Twitter (X)