Unwittingly Getting Swole: Hereditary Angioedema

Maybe it’s steroids? Maybe she’s born with it? Wait… no, she’s definitely born with it. It’s HAE. How fitting is it that Rare Disease Day falls on a fairly rare day, Feburary 29th! In this episode, the fellas sit down with Jordyn Campbell, who not only shares her eye-opening journey with hereditary angioedema (HAE) but also how she's punching back with advocacy and awareness. What the hell is HAE? Here’s the elevator pitch - your body decides to puff up like a balloon at the most inconvenient times, thanks to a rare genetic curveball. Welcome to Jordyn's world, where getting swole is just part of the daily routine, no gym membership needed. But there's more to her story than just coping with HAE. Through battles with misdiagnoses and the quest for the right treatment, Jordyn highlights the brighter side of her condition, including her impactful work with HAE Canada and finding unexpected joys in life's challenges. To cap it all off in the wrap-up, the boys are diving into a cheeky discussion about a recent study from plastic surgeons on the ideal male buttocks. Thankfully the Gen-Z consultant came high key came through to translate the science with a zero dose of cringe. The TLDR; This deep dive into male booty aesthetics fills a big ol' gap in the glow-up science, giving us the 411 on what's peak for the peach. These gems could pave the way for next-level booty sculpting moves, making sure bros walking into the OR can walk out feeling 100.

Stick around for the end of the show to hear Jordyn’s latest single “Hit and Run”

Key Takeaways

- Hereditary angioedema (HAE) is a rare genetic condition characterized by severe swelling of various body parts.

- Receiving a diagnosis for HAE can be challenging, with many individuals experiencing misdiagnosis or a lack of clear answers.

- Living with HAE can have a significant impact on daily life, including work, relationships, and sexual activity.

- Advocacy and raising awareness are crucial for individuals with HAE to receive proper care and support.

- The availability and coverage of different medications for HAE vary from province to province, leading to variations in treatment for patients.

- Finding the right drug for HAE patients can be complex, as different drugs work differently for each individual based on their gene mutation.

- The decision to have children when living with a hereditary condition like HAE involves considering the potential impact on the child's life and the parents' preparedness to handle the challenges.

- Genetic testing can provide valuable information for individuals considering having children, allowing them to make informed decisions about their family planning.

- HAE has not taken anything away from Jordyn's life, and she sees it as a part of her normalcy. It has given her confidence, the ability to help others, and a platform to share her experiences.

- Having a hereditary condition like HAE can shape one's perspective on life and provide a unique understanding and preparedness for the challenges it presents.

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