#181 - 🫁 Talking about BPD w the BPD Collaborative (Ft. Dr Abman, Dr. Cuevas Guaman and Dr. Eldredge)
Feb 4, 2024
56:22
auto_awesome Snipd AI
In this episode, Dr. Steve Abman, Dr. Milenka Cuevas Guaman, and Dr. Laurie C. Eldredge from the BPD Collaborative delve into Bronchopulmonary Dysplasia (BPD). They discuss the importance of interdisciplinary care and collaboration in managing BPD, the impact of antenatal and postnatal factors on disease development, and the value of including patients and families in the work of the collaborative. They also highlight the launch of a parent support group and upcoming updates on the BPD Collaborative's meeting and website.
Read more
AI Summary
AI Chapters
Episode notes
auto_awesome
Podcast summary created with Snipd AI
Quick takeaways
The BPD Collaborative promotes interdisciplinary care and collaboration to improve outcomes for patients with Bronchopulmonary Dysplasia (BPD).
The collaborative emphasizes the importance of involving patients and families in decision-making and support programs.
By prioritizing collaboration, research, and career development, the BPD Collaborative drives continuous progress in understanding and treating BPD.
Deep dives
BPD Collaborative: Promoting Interdisciplinary Care for Patients with BPD
The BPD Collaborative is a network of neonatology and pulmonary experts dedicated to improving the care of patients with Bronchopulmonary Dysplasia (BPD). With 42 centers across the United States and five international centers, the collaborative focuses on interdisciplinary approaches to address the complexity of BPD. The collaborative holds an annual meeting, where teams present research and discuss challenges in BPD care. The collaborative's work has resulted in impactful publications, such as a 2017 paper on interdisciplinary care of BPD patients. They also prioritize involving patients and families, with initiatives like peer mentorship programs. The collaborative's website and social media platforms provide resources for interested individuals and invite collaboration.
Addressing the Complexity of BPD
BPD is a challenging condition with diverse manifestations, involving the lungs, heart, nutrition, and more. The collaborative's multi-specialty approach allows for a comprehensive understanding of the disease and improved patient care. Researchers and clinicians participate in different subgroups, focusing on areas like epidemiology, ventilation, pulmonary hypertension, nutrition, and advocacy. They discuss research, clinical challenges, and share insights from various perspectives. The collaborative emphasizes team science and encourages young professionals to actively participate in research, publish work, and present at meetings. By recognizing the importance of patient and family input, they aim to improve care and outcomes for BPD patients at all stages of life.
The Power of Collaboration
Through collaboration, the BPD Collaborative has created a supportive and innovative environment for professionals in the field. The collaborative's growth from a small gathering to a global network of centers demonstrates the value of shared knowledge and resources. They have developed a registry to collect patient data and explore varying practices across centers. By collaborating on research studies, they aim to address knowledge gaps, develop guidelines, and optimize treatment strategies. The collaborative also organizes annual meetings, where teams discuss ongoing projects, present research, and address challenges. The collaborative's commitment to interdisciplinary care, engaging families, and fostering career development makes it a valuable platform for advancing BPD care.
Family Perspective and Longitudinal Care
Parents and families play a critical role in the care of BPD patients. Their deep understanding of their child's journey and experiences makes them valuable partners in decision-making. The collaborative recognizes the importance of family input and engages families in various ways. Parent advisors participate in discussions, offering unique insights and perspectives. The collaborative also organizes parent support groups, providing a platform for families to connect and support one another. Longitudinal care, from neonatal units to outpatient follow-up, allows clinicians to develop strong relationships with families and tailor care accordingly. Listening to families' experiences helps identify gaps in knowledge and areas for improvement, enriching both research and clinical practice within the collaborative.
Impactful Work and Continuous Progress
The BPD Collaborative has achieved significant milestones since its inception. Their work on interdisciplinary care, optimizing mechanical ventilation strategies, and addressing disparities has garnered recognition and made a meaningful impact. The collaborative's commitment to team science, collaborative research, and career development opportunities have expanded our understanding of BPD and shaped clinical practice. They continue to publish impactful papers, present research findings, and actively engage new professionals in their collaborative efforts. By focusing on collaboration, interdisciplinary care, patient involvement, and ongoing research, the BPD Collaborative aims to drive continuous progress in improving outcomes for patients with BPD.
In this episode of The Incubator, hosts Ben and Daphna discuss Bronchopulmonary Dysplasia (BPD) with Dr. Steve Abman, Dr. Milenka Cuevas Guaman, and Dr. Laurie C. Eldredge from the BPD Collaborative. They cover the progression of BPD understanding, emphasizing the collaborative efforts in neonatology, the critical role of interdisciplinary care, and current approaches to improve patient outcomes.
As always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below.
Enjoy!
Get the Snipd podcast app
Unlock the knowledge in podcasts with the podcast player of the future.
AI-powered podcast player
Listen to all your favourite podcasts with AI-powered features
Discover highlights
Listen to the best highlights from the podcasts you love and dive into the full episode
Save any moment
Hear something you like? Tap your headphones to save it with AI-generated key takeaways
Share & Export
Send highlights to Twitter, WhatsApp or export them to Notion, Readwise & more
AI-powered podcast player
Listen to all your favourite podcasts with AI-powered features
Discover highlights
Listen to the best highlights from the podcasts you love and dive into the full episode