TLC Sessions - Living with Long Covid

Episode 62: Prof. Harlan Krumholz - Vibrations, LISTEN, and Paxlovid studies

Aug 13, 2023
Prof. Harlan Krumholz, cardiologist at Yale University, discusses his latest studies on Long Covid, including the LISTEN study, Paxlovid trial, and research into internal tremors and vibrations. He advocates for patient-centric care and emphasizes the importance of collaboration and advocacy for Long Covid patients. The chapter also explores challenges faced by patients, the need for open science and public comment on research, and the impact of internal tremors on individuals with Long Covid.
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ANECDOTE

Crash Triggered By Sensory Overload

  • Kate described a sudden crash before travel with severe tremors, headaches, and mood changes.
  • She linked the trigger to sensory overload from loud crowded events like a race.
ANECDOTE

IUD Linked To Symptom Flare

  • Norine described severe symptoms after IUD insertion, including water retention and high blood pressure.
  • She believed the device leaked hormones and affected her long COVID stability, prompting removal.
INSIGHT

Research Should Be Patient-Centered

  • Harlan Krumholz reframed long COVID research as an opportunity to redesign patient-centered science.
  • He argues research should measure tangible outcomes that improve people's lives, not just generate papers.
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