Living with Long covid
UWS Pacing trials with Nilihan Sanal Hayes
Nov 6, 2022
Nilihan Sanal Hayes, an expert in research and trials, discusses ongoing pacing trials aimed at aiding those with Long Covid and ME/CFS. They delve into the innovative use of real-time feedback through wearable technology to assist individuals in managing their symptoms. The conversation highlights the historical neglect of post-viral conditions and the urgent need for research funding. Nilihan also shares how findings will be disseminated via social media, fostering community engagement in the exploration of better therapeutic resources.
27:18
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Quick takeaways
- The podcast highlights the urgent need for comprehensive research and funding to address the overlooked challenges of long COVID and related conditions.
- Pacing is presented as a promising strategy in a controlled trial, aiming to improve energy management for individuals suffering from long COVID and ME/CFS.
Deep dives
Personal Experiences with Long COVID
Living with long COVID presents multifaceted challenges that can significantly affect both personal and professional life. The narrative emphasizes the emotional toll and daily struggles faced by individuals navigating the complexities of long COVID. A firsthand account highlights the transition from being a frontline worker to experiencing the disease's debilitating effects, which brings to light the urgent need for supportive communities. Constructing platforms for sharing these experiences can help in fostering understanding and potentially aiding recovery.
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