Understanding MRKH With Ally Hensley and Ellamae Fullalove

There is a real lack of conversation around many medical conditions, and especially those which are not immediately visible, and MRKH falls into this category. Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome is a congenital condition which is characterised by the vagina and uterus being underdeveloped or absent, alongside other symptoms. As there are no physically outwards signs until someone reaches puberty and doesn't start their period, this leaves many discovering that they have the condition and everything that comes with it, typically around ages 16-18.

There are so many factors that can impact someone with the condition from being unable to carry a pregnancy, to uncomfortable, painful and sometimes impossible penetrative sex; through to the psychological influence, thoughts and shaping of identity and self-esteem, and the way that it can potentially shape relationships.

My brilliant guests for this conversation are both women with MRKH and huge advocates and conversation starters, and they bring so much of themselves to this episode as well as so much information about how we can get educated about a condition that impacts so many, but is still rarely heard of. 

Ally Hensley is an author, speaker and global ambassador for women's health. Born with MRKH syndrome, she advocates for awareness and support of this condition. Ally co-founded MRKH Australia and Global MRKH, and serves on the board of UK's MRKH Connect. Her podcast, Stigma Shakers, tackles taboo topics and has gained international recognition, and her debut memoir releases later in 2024.

 

Ellamae Fullalove, is an artist, speaker & founder of Va Va Womb, where she also runs her advocacy work - Mind Over MRKH. She founded a community where she curates social and mindful events in the UK , produced the worldwide MRKH podcast & sends gift boxes to MRKHers.  By day she works in social housing.

Follow Ally Hensley on Instagram at @Ally_Hensley and Ellamae Fullalove at @Ellamaebeing

 

This series has been brought to you by the luxury sexual wellness brand Lelo, who are offering listeners 30% off all Lelo products purchased on BeautyBay.com  Use the code KMOYLE30 until 11.59pm on 31st December 2024.

 

The Sexual Wellness Sessions is hosted by Kate Moyle, a Psychosexual & Relationship Therapist and Certified Psycho-Sexologist, and author of The Science Of Sex : Every Question About Your Sex Life Answered.

Follow Kate on Instagram at @KateMoyleTherapy

 

DISCLAIMER: The content in this podcast is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Never disregard professional medical advice or delay in seeking it because of something you have heard on this podcast, and always seek the advice of your doctor or a qualified healthcare provider.