The Incubator #NEC SYMPOSIUM - 👩‍⚕️ Dr. Susan Hintz - Amplifying Family Voices in NEC Advocacy and Exploring Long-term Outcomes
What if we told you that the family's voice could change the face of necrotizing enterocolitis (NEC) advocacy and treatment? Well, that's exactly what we're diving into with our special guest, Dr. Susan Hintz. As we dig into the inspiring sessions from the NEC symposium, we reflect on the immense power of a strong partnership between parents and medical professionals. Dr. Hintz shares insights on risk factors and the ways we can enhance our support for families navigating this condition. Additionally, we spotlight the incredible advocative work of Kim Novod and Jen Canvasser, who've transformed the world of NEC care through their relentless efforts.
As we move to the latter part of our discussion, we pose a critical question - are we truly understanding the long-term outcomes of NEC? We challenge the conventional two-year outcomes and advocate for a more comprehensive understanding of the implications on families in the long run. Dr. Hintz, during her enlightening session at the NEC Symposium, emphasizes the importance of meaningful questions and outcomes that resonate with families and survivors. We circle back to episode 106 of the Incubator podcast, highlighting the crucial aspect of neurological outcomes and long-term impacts into adulthood. As we wrap up, we take a moment to salute the mentors who've molded our understanding of NEC and motivated us to continually strive for better outcomes for families.
As always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below.
Enjoy!