The Craziest F*ing Story We've Ever Heard | The Father Who Built a Gene Therapy

Some people hit walls. Others knock them down, build a lab, raise millions, and call up strangers to make a genetically engineered mouse. When Terry Pirovolakis learned his young son Michael had SPG50 — a rare degenerative disease with no treatment and a grim prognosis — he didn’t spiral. He mobilized. In this jaw-dropping story of parental devotion and scientific hustle, Terry recounts how he went from IT consultant to biotech trailblazer, spearheading the development of a gene therapy from scratch. From homemade mice to confronting the Prime Minister, this episode is a whirlwind of heartbreak, grit, global collaboration, and unshakable hope. It’s not just about saving one child — it’s about lighting a path for thousands more.

Sickboy LIVE in Calgary: https://www.showpass.com/podsummityyc2025/

Follow Sickboy: 

Instagram: https://www.instagram.com/sickboypodcast

Tiktok: https://www.tiktok.com/@sickboypodcast

Discord: https://discord.gg/expeUDN