The Devastating Beginning and Promise for a Cure

Matt Wilsey faced unimaginable fear when his daughter Grace was born in critical condition, leading him to promise to discover what was wrong. Grace was diagnosed with NGLY1 deficiency, a rare genetic disorder affecting only about 130 cases globally, compelling Matt to leverage his entrepreneurial background to create a solution. Despite having no scientific experience, Matt founded Grace Science to develop treatments for Grace and others battling rare diseases, symbolizing his transformation from a worried father to a committed leader in biotech. This journey reflects the emotional and professional drive that motivates many entrepreneurs, particularly in the health sector, where personal stakes are incredibly high.