State of Digital Clinical Trials Podcast

The State of Patient Engagement: From a Patient Advocate

21 snips
Dec 3, 2024
Manny Vazquez chats with Trishna Bharadia, a passionate patient engagement consultant and advocate, dedicated to making healthcare more patient-centered since her own life-altering diagnosis 15 years ago. They delve into how involving patients early in clinical trial design can lead to breakthroughs in care. Trishna shares insights on overcoming challenges and emphasizes the necessity of diverse patient perspectives. The conversation envisions a healthier future by advocating for equity and removing barriers to access in the medical field.
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ANECDOTE

Inhaled Insulin Failure From Lack Of Patient Input

  • A science-backed inhaled insulin failed due to lack of early patient involvement.
  • Patients disliked the bulky device, distrust in inhalation, and practical difficulties affecting acceptance.
ADVICE

Start Patient Engagement Thoughtfully

  • Define your questions clearly before engaging patients and choose the best engagement method.
  • Start patient engagement early, staying transparent about challenges to gain patient understanding and cooperation.
INSIGHT

Equity And Patient Involvement Matters

  • Equitable patient engagement requires flexibility about timing, language, and format to include diverse voices.
  • Patient involvement should extend to scientific publications if they contributed early in trial design.
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