Making It Awkward

Autism Research Ethics and the Exploitation of Alternative Stats with Jocelyn Green

Nov 19, 2025
Jocelyn Green, an autism-focused researcher and communicator, joins the discussion to tackle vital issues in autism research and the ethics surrounding it. They delve into the controversial claim that 37% of individuals may lose their autism diagnosis, shedding light on misinterpretations in clinical studies. Jocelyn emphasizes the nuances of masking behaviors, especially in girls, and critiques the stigma attached to labels. The conversation also explores the societal pressures faced by autistic individuals and the importance of understanding support needs over simplistic categorizations.
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ANECDOTE

Finger Paints As A Decision Moment

  • Teresa Lyons described giving her non-speaking daughter finger paints and asking if she wanted acceptance or 'help.'
  • The daughter painted a heart, which Lyons read as a desire to be made 'healthy.'
INSIGHT

37% Figure Needs Context

  • A 2023 study re-evaluated children diagnosed at 1–3 years and found 37% no longer met autism criteria by 5–7 years.
  • Jocelyn Green cautions that this result can reflect many causes, not a simple 'cure'.
INSIGHT

Multiple Explanations For Non-Persistence

  • The study's reassessment used one experienced psychologist and multiple measures, but conclusions remain uncertain.
  • Jocelyn warns the result could reflect misdiagnosis, interventions, developmental trajectory, or masking.
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