How does someone's life change when they get or discover a chronic medical condition? What is it like to have a long-term relationship with the modern healthcare system? How do we define medical necessity in a profession where knowledge is highly specialized while also balancing a patient's autonomy and quality of life? What are the impacts of creating lifesaving technology on the remote areas of the world where the resources to make them are extracted, and how do we take those impacts into the calculus of lifesaving value? This week host Rachelle Saunders speaks with Katherine Standefer, the author of the book "Lightning Flowers: My Journey To Uncover the Cost of Saving a Life" about her experience of having Long QT syndrome, navigating the US healthcare system, and the complications of trying to balance saving a life, living a life, and trading lives.