Outsmart Your Genes

Cracking the Code of Rare Diseases: Denise Morrow’s Genetic Discovery | Ep2

Mar 7, 2025
In this engaging conversation, Denise Morrow, a patient advocate and the founder of Genetics for Health, shares her remarkable journey from suffering with undiagnosed health issues to discovering a primary CoQ10 deficiency through whole genome sequencing. She discusses the transformative power of genetic data in unveiling rare diseases and her mission to empower others with similar experiences. Together with Dr. Karen Erbs, Denise aims to bridge patient-led genomic insights with clinical practice, making personalized medicine accessible for all.
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ANECDOTE

Life-Changing CoQ10 Diagnosis

  • Denise discovered a primary CoQ10 deficiency via whole genome sequencing and began a specific ubiquinol supplement in April 2023.
  • The supplement dramatically improved her functioning and returned her to a semblance of normal life.
ANECDOTE

From Corporate Life To Healthcare CEO

  • Denise left a thriving corporate career in 2011 after sudden, severe symptoms and hundreds of lipomas disrupted her life.
  • She became her own healthcare CEO while searching for answers and tracking down Dr. Karen Erbs.
INSIGHT

Raw Data Enables Citizen Scientists

  • Receiving filtered genetic reports left Denise frustrated because raw data was inaccessible for deeper research.
  • Access to full genome data empowered her to act as a citizen scientist and pursue root causes.
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