Alison's persistence and diligence in urging further investigation and diagnosis played a critical role in saving Julie's life by identifying her rare and potentially fatal condition
Julie's diagnosis of idiopathic subglottic stenosis highlights the importance of thorough investigation and proper diagnosis in potentially life-threatening medical cases
Julie Sivam developed a persistent cough and sought treatment from various doctors who could not find the cause. While receiving weekly allergy shots at an allergy clinic, she met Alison, a nurse practitioner, who became perplexed by Julie's symptoms. Alison persisted in her concern, noting that Julie's voice sounded odd and her breathing was difficult. She urged a physician to perform a scope on Julie's trachea, revealing idiopathic subglottic stenosis, a rare and potentially fatal condition where the airway narrows due to scar tissue. Julie credits Alison's persistence and diligence for saving her life by getting her the timely diagnosis and treatment she needed.
Idiopathic subglotic stenosis is a rare and serious condition
Idiopathic subglottic stenosis is a complex condition that affects approximately one in 400,000 people. It is characterized by the narrowing of the airway in the upper trachea, leading to significant breathing difficulties. If left untreated, this condition can be fatal as the airway can completely close. Julie Sivam's diagnosis of idiopathic subglottic stenosis was made possible by the persistence and careful observation of Alison, her nurse practitioner at an allergy clinic. Alison's determination to get Julie's symptoms thoroughly investigated and properly diagnosed played a critical role in saving Julie's life.
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The Rarity of Diagnosis: A Journey from Dismissal to Discovery