The Cribsiders S1 Ep1: Cystic Fibrosis Licked-ty Split with Dr. Whittney Warren
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Jul 6, 2020 AI Snips
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Explain CF Clearly and Calmly
- Explain cystic fibrosis simply as a genetic disease causing thick, sticky secretions affecting lungs and digestive organs.
- Direct patients and families to the Cystic Fibrosis Foundation website for clear, layman info instead of scary internet searches.
Improved Life Expectancy with Modulators
- Life expectancy for CF patients has improved to upper 40s and is increasing with new therapies.
- Children diagnosed now with CFTR modulators will likely live much longer, healthier lives.
Wide CF Symptom Variability
- Cystic fibrosis shows wide symptom variability even with the same CF genotype.
- Disease severity is influenced by access to care and treatments, making personalized prognosis difficult.