VJHemOnc Podcast

Improving care for patients with SCD: pain management, ongoing projects & unmet needs

Dec 5, 2024

Discover innovative strategies for pain management in patients with sickle cell disease and the transformative Universal Care Plan initiative. Learn about the Sickle Eye Project, which aims to tackle visual impairments linked to the condition. Uncover the critical healthcare gaps in sub-Saharan Africa, such as the need for newborn screening. The podcast also emphasizes the psychosocial needs of patients, advocating for integrated mental health services to support their emotional well-being.

16:45

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Quick takeaways

Effective pain management for sickle cell disease requires individualized plans that integrate pharmacological methods with complementary therapies for holistic care.

The Universal Care Plan project aims to enhance personalized care accessibility for sickle cell patients, promoting shared decision-making and timely medical information.

Deep dives

Individualized Pain Management Strategies

Effective pain management in sickle cell disease requires individualized pain action plans that integrate both pharmacological and non-pharmacological methods. Specialists emphasize that a comprehensive approach should include medications such as non-steroidals, opioids, and special opioids like buprenorphine, which offers a stable long-duration relief while reducing the risk of dependency. Additionally, resilience skills and complementary therapies, such as heat application and hydration, should form an integral part of these pain management plans. This holistic care model recognizes that each patient's experience of pain is unique and that strategies must accommodate their specific needs and circumstances.

Intro

3min

Transforming Care for Sickle Cell Patients: The Universal Care Plan Initiative

5min

Understanding the Sickle Eye Project: Visual Impairment in Sickle Cell Disease

3min

Addressing Unmet Needs in Sickle Cell Disease Care

3min

Addressing Psychosocial Needs in Sickle Cell Disease Care

3min

This week’s podcast focuses on strategies to improve care for patients with sickle cell disease (SCD), featuring expert insights from the 19th Annual Scientific Conference on Sickle Cell and Thalassemia (ASCAT 2024), which was held in London, UK. You will hear from Natasha Archer, MD, MPH, Harvard Medical School, Boston, MA, Subarna Chakravorty, MBBS, MRCPCH, FRCPath, PhD, King’s College Hospital NHS Trust, London, UK, Christiana Dinah, BSc, MBBS, MRes, London North West Healthcare NHS Trust, Harrow, UK, Leon Tshilolo, MD, PhD, Centre Hospitalier Monkole, Kinshasa, DR Congo, and Marsha Treadwell, PhD, University Of California San Francisco, San Francisco, CA. They speak about pain management in SCD, ongoing projects including the Universal Care Plan Project and the Sickle Eye Project, and unmet needs in Sub-Saharan Africa and from a psychosocial perspective.

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