The Unexpected Gift: Flipping the Script on Down Syndrome and Embracing a Better Story

How choosing — or being chosen — to parent a child with Down syndrome became one of life’s greatest blessings for six parents. In this open, honest, and emotionally powerful conversation, Mike Erre and his wife Justina are joined by three incredible couples in the Voxology “home office” to celebrate World Down Syndrome Day with raw storytelling, reflection, and a resounding message: this diagnosis is not a tragedy — it’s an invitation to discover unimaginable joy, depth, and love.

Heather and Josh, Mercedes and Andy, and Mike and Justina candidly share how having (or adopting) a child with Down syndrome initially sparked fear and grief, but ultimately transformed them into deeper, more compassionate, and joy-filled humans. The group explores how societal stereotypes and eugenic narratives deepen isolation, while radically inclusive communities, rooted in Jesus’ love and example, offer grace, connection, and true belonging.

Key Takeaways: • The Beauty of “Yes” – Saying yes to parenting a child with Down syndrome opened doors to radical love, seismic personal growth, and deepened relationships. • Resisting the Culture of Perfection – Against a backdrop of societal fear and genetic “control,” these families offer a prophetic witness to the value and sacredness of every life. • Joy in the Hard – While raising children with special needs brings challenges, the community reflects on how “hard” doesn’t mean “bad,” and struggle often breeds true joy. • The Power of Presence – Children with Down syndrome live fully in the moment, modelling a kind of joy, purity, and love we desperately need in modern culture. • Honest Reflections – Fears around the future, care, and inclusion are real, but so too is the vibrant beauty of the community and resilience that flows from a life rebuilt around love.

Guest Highlights: • Mercedes & Andy Lara – Parents of Sunflower Mae Lara, who was adopted with Down syndrome. Mercedes shares the story of radical openness birthed out of heartbreak and rooted in mission. • Heather & Josh Avis – Co-creators of “Macy Makes My Day,” recounting the unplanned-yet-divinely-ordained adoption of their daughter Macy, and how it led to a movement of advocacy, writing, and awareness. • Justina & Mike Erre – Parents of Seth, whose arrival redefined expectations, demolished fears, and brought deep compassion, connection, and healing to their family.

Resources Mentioned: • Sunny Fun Days (YouTube Channel) – Sunny Fun Days • Macy Makes My Day (Instagram) – @macymakesmyday • Hooray For Sunny (Instagram) – @hooray4sunny • Heather Avis Website + Book “The Lucky Few” (Coming Soon) – heatheravis.com • March 21st – World Down Syndrome Day: Recognizing the beauty and significance of that extra 21st chromosome

Join us in rejecting the lie that a Down syndrome diagnosis is a misfortune. Discover how children with that tiny extra chromosome reflect the image of God in ways that humble, challenge, and teach us all.

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Music in this episode by Timothy John Stafford

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