This podcast explores the trade-offs of sharing personal data online, including the story of a man whose HIV status was exposed without his permission. It discusses the value of free services and the prevalence of privacy concerns in advertisements. The podcast also delves into data mining and privacy concerns with Palantir Technologies, as well as the impact of targeted ads and the GDPR. It concludes by highlighting the need for change and a new relationship with power in the digital age.
Personal data breaches can have severe consequences, as seen in the case of Tom Hayes and his HIV status being weaponized.
A shift is needed towards valuing privacy as a currency and exploring alternative models for data protection in the digital age.
Deep dives
Loss of Privacy and Weaponization of Personal Data
The podcast highlights the story of Tom Hayes, who experienced a loss of privacy when his HIV status was weaponized by his ex-partner. This incident led Tom to contemplate suicide and emphasized the potential dangers of personal data being used against individuals. The story also mentions how popular apps like Grindr have breached privacy by sharing users' HIV status with other companies. Such incidents raise concerns about our control over personal data and the need for stricter data protection.
Legacy Bargains and Evolving Privacy Landscape
The podcast discusses the outdated bargains we make when trading personal data for free online services. Legacy systems, such as the TV advertising model, no longer align with the realities of the digital age. The episode explores the European Union's General Data Protection Regulation (GDPR) as a step towards better data protection. However, challenges remain, including dark patterns and the need for individual awareness and willingness to protect privacy. Alternative models, like paying for services or reimagining the internet's ad-driven strategy, are also considered.
Searching for a Privacy-Focused Future
The podcast examines the potential for a new bargain that prioritizes privacy. Jaron Lanier proposes a internet where users pay for services and have more control over their data. This vision aims to address the current information imbalance and reliance on targeted advertising. While Lanier's vision may face practical challenges, it highlights the importance of valuing privacy as a currency in the digital realm. The episode concludes by underlining the need for ongoing dialogue and efforts to negotiate new deals for a more humane online experience.
We’re told from a young age to “accept the things we cannot change.” But should this be the case online as well? We click “Accept” every day, but often don’t know what we’re giving away. Is it a fair trade, and should we demand a better bargain? Veronica Belmont and special guest Dave Pell explore if what we get for what we give online is a good deal. We hear how one man’s HIV status was exposed without permission, how a massive data-mining company is using our information to predict how we'll behave, and why on earth our email inboxes are filling up with privacy policies.
IRL is an original podcast from Mozilla. For more on the series go to irlpodcast.org
Tom Hayes works for an organization called Beyond Positive. Learn more.