13. Empowering Families Affected by Epilepsy w/ Nancy Monica

Episode Overview: 

In this powerful episode, Dr. Tony Ebel sits down with Nancy Monica, a fierce advocate in the epilepsy community who played a crucial role in helping Dr. Tony's son Oliver overcome his seizures. Nancy shares her emotional journey as a mother of a daughter with epilepsy and how it led her to become a driving force in connecting families with the right doctors and resources. Together, they discuss the importance of chiropractic care, finding the right medical team, and the potential for healing in even the most challenging cases.

Key Topics Covered:

• 00:06:37 - Nancy discusses her early experiences navigating the epilepsy world with limited information and resources.
• 00:11:52 - Megan's severe allergic reaction to medications (Stevens Johnson Syndrome) and her road to recovery.
• 00:14:39 - Nancy's initial skepticism about Dr. Tony's approach to treating epilepsy with chiropractic care.
• 00:37:10 - The role of medications in epilepsy treatment and the importance of using them judiciously.
• 00:40:57 - How neurologically-focused chiropractic care can help reduce the need for medications by addressing the root cause of seizures.
• 00:44:42 - The safety and gentleness of pediatric chiropractic adjustments.
• 00:49:44 - The impact of growing up with a sibling with special needs on Nancy's other daughters' career choices.
• 00:56:26 - The importance of reaching parents of children with epilepsy and connecting them with the right resources.
• 00:57:00 - The need for pediatric chiropractic care in every NICU and the steps required to make it a reality.

Epilepsy Health Management:

Rianne Rybinski, Executive Director 815 321-1287

Nancy Monica Bio – In 1994 my 4th daughter was born, due to delivery complications, she began having seizures at 12 days of age.  

This changed the life of our entire family.  I went from working at Motorola in Marketing, to a full on crusade to combat epilepsy.  I co-founded CURE, Citizens United for Research in Epilepsy, which has raised more than $1B to fund cutting edge research for epilepsy worldwide.  I served on several boards and committees including, Options & Advocacy, Families ETC., CDC Expert panel participant for the IDEA, NIH Benchmark Committee Member and Co-chair and founder of Advocates for Epilepsy.  Epilepsy has become a special interest of mine, due to being directly affected by this life robbing disorder with my daughter.

In 1998 I began serving individuals in McHenry County with epilepsy.  In 2010, as the Director of Telehealth, I co-founded the first ever epilepsy telehealth program in the U.S. along with Marvin Rossi, MD., PhD., Epileptologist.  This unique model combined state-of-the art subspecialty medical care, mental health, pharmacist consultation and community based social services.   Data collected over this 10 period proved healthcare cost savings by reducing local emergency department visits.  This program was monitored by the CDC with hopes to replicate throughout the U.S.

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