Ep401 - Kathy Bates | The Road to Curing Lymphedema
Dec 8, 2023
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Kathy Bates and others discuss the challenges and lack of knowledge surrounding lymphatic diseases, and emphasize the need for increased awareness and understanding. They share personal experiences and highlight the importance of advocacy. The mission to raise awareness and educate people about lymphedema is discussed, as well as the need for activism and sharing personal battles to make a difference.
The lymphatic system is often overlooked in medical education, leading to limited knowledge and understanding among medical practitioners.
Increasing awareness and understanding of lymphedema among healthcare professionals and society is crucial for better support and quality of life for those affected.
Deep dives
The Importance of Lymphatic Education and Research
Kathy Bates, Dr. Stanley Roxson, and William Rapice visit Google to discuss the scourge of lymphoedema and lymphatic diseases, as well as the importance of activism and research in changing the future for millions. They highlight the challenges faced by patients and the current state of care and treatment. The Lymphatic Education and Research Network (LEARN) seeks to fight lymphatic diseases through education, research, and advocacy, with a mission to accelerate prevention, treatments, and cures. LEARN is also dedicated to investigating preventative and therapeutic benefits for other diseases impacted by lymphatic function, such as heart disease, obesity, AIDS, rheumatoid arthritis, diabetes, and cancer metastasis.
Understanding Lymphedema and the Importance of Medical Education
Dr. Stanley Roxson, a cardiologist and professor, explains how the lymphatic system is often overlooked and under-taught in medical education. He highlights the lack of knowledge among medical practitioners and the limited time dedicated to studying the lymphatic system. Roxson emphasizes the vital role of the lymphatic system in maintaining the health of cells and the body's immune response. He also discusses lymphedema, a common lymphatic disease, which occurs when the lymphatic system fails to function properly, leading to swelling and deformity in certain body parts. Roxson calls for increased awareness, understanding, and recognition of lymphedema by healthcare professionals.
Personal Stories and Advocacy
Kathy Bates shares her personal experience with lymphedema, having witnessed her mother's struggles with the condition. She describes her fear of developing lymphedema after having a double mastectomy due to breast cancer. Bates explains how she became involved with advocacy and supporting organizations like LEARN. She emphasizes the need to raise awareness about lymphedema and shares stories of individuals she has met who have shown remarkable resilience and determination in managing the condition. Bates also addresses the importance of empathy, imagination, and education in fostering understanding and support for those with lymphedema.
The Mission of LEARN and the Call for Activism
William Rapice, the President and CEO of LEARN, discusses the organization's mission to raise awareness, promote research, and provide education and resources for lymphatic diseases. Rapice emphasizes the need for activism and the power of collective action to push for research funding, better education for medical professionals, and improved treatments. He highlights the large number of people affected by lymphedema and the need to challenge the lack of attention and understanding surrounding the disease. Rapice stresses the importance of changing language and perception, reiterating that lymphedema is a disease and not just a condition that requires ongoing management and support.