#322 Susannah’s Nano-Rare Journey: 2 Years of Treatment and Triumph

Two years of treatment—two years of strength, courage, and blazing a trail for other nano-rare patients! 

 

In this special episode drop, we’re revisiting the inspiring journey of Susannah, whose story was the first ever shared on the Patient Empowerment Program podcast. Now, two years later, Susannah’s father, Luke Rosen, and her physician, Dr. Jennifer Bain, join us to share her remarkable progress since beginning regular treatments. They highlight incredible improvements in Susannah’s motor skills, cognition, energy, and overall quality of life.

 

This episode originally aired on the Patient Empowerment Program podcast, where our host, Kira Dineen, serves as a producer. You might even recognize her voice in some of the promos and ads for the show!

 

For long-time listeners of DNA Today, you might recall that we shared the pilot episode of the Patient Empowerment Program podcast featuring Susannah’s story back in Episode 186. Now, we’re thrilled to bring you this heartwarming update to see how far Susannah has come and to celebrate her incredible resilience.

 

Be sure to check out more episodes of the Patient Empowerment Program podcast, which focuses on empowering nano-rare patients and their families. Search for the podcast in your favorite podcast app or visit its listing on n-Lorem’s website.

 

Get ready, genetic nerds—another brand-new episode of DNA Today drops this Friday! You can always count on us to deliver fresh content every Friday. 

 

While you wait, why not dive into our library of over 300 episodes? Binge them all on Apple Podcasts, Spotify, our website, or wherever you love to listen—just search “DNA Today.”

 

Prefer watching? We’ve got you covered! For the past four years, we’ve been recording episodes with video, including some filmed at the iconic NBC Universal Stamford Studios. Check them out on our YouTube channel! 

 

DNA Today is hosted and produced by Kira Dineen, MS, LCGC, CG(ASCP)CM . Our Video Lead is Amanda Andreoli. Our Social Media Lead is Kajal Patel. Our Outreach Intern is Liv Davidson. And our logo Graphic Designer is Ashlyn Enokian, MS, CGC. 

 

See what else we are up to on Instagram, X (Twitter), BluSky, Threads, LinkedIn, Facebook, YouTube and our website, DNAToday.com. Questions/inquiries can be sent to info@DNAtoday.com.